Rehm R S
University of New Mexico, Health Sciences Center, Alberquerque 87131-1061, USA.
Image J Nurs Sch. 1999;31(1):33-8. doi: 10.1111/j.1547-5069.1999.tb00417.x.
To explore Mexican-American family experiences with chronic childhood illness, from the perspective of parents, and report findings about the influence of religious faith on families' spiritual and secular responses to illness. Mexican-Americans are often characterized as religious, fatalistic, and passive, but families' perceptions of the consequences of their daily faith and its meaning in the face of chronic childhood illness is not well understood.
Descriptive. The sample included 25 parents from 19 families living with children with a variety of chronic conditions. Data were collected in 1995-1996.
Interpretive, using symbolic interaction as the framework, and in-depth interviewing for data collection.
Parents professed a variety of beliefs and devotional practices. Six unifying dimensions of religious faith were related to parental caretaking and decision making for the family: (a) God determined the outcome of the child's illness, (b) God and health care for the child were closely linked, (c) parents took an active role in facilitating God's will, (d) families had obligations to God, (e) intercession with God by others was often sought by or offered to the family, and (f) faith encouraged optimism.
Families were not fatalistic in the sense of feeling outcomes were predetermined and unalterable. Family members took spiritual and secular actions to assure the best possible familial and professional care for their child and sought to influence God's good will on behalf of the child and family.
从父母的角度探讨墨西哥裔美国家庭在孩子患慢性病方面的经历,并报告有关宗教信仰对家庭在精神和世俗层面应对疾病的影响的研究结果。墨西哥裔美国人常被描述为笃信宗教、宿命论且消极被动,但家庭对其日常信仰的影响以及在面对孩子慢性病时信仰的意义的认知尚不清楚。
描述性研究。样本包括来自19个家庭的25位父母,这些家庭的孩子患有各种慢性病。数据于1995 - 1996年收集。
采用解释性研究,以象征互动为框架,通过深度访谈收集数据。
父母表达了各种各样的信仰和虔诚的做法。宗教信仰的六个统一维度与父母为家庭的照料和决策相关:(a) 上帝决定孩子疾病的结果,(b) 上帝与孩子的医疗保健紧密相连,(c) 父母在促成上帝的旨意方面发挥积极作用,(d) 家庭对上帝负有义务,(e) 家庭经常寻求他人向上帝代为祈祷或他人主动为家庭向上帝祈祷,(f) 信仰鼓励乐观态度。
家庭并非在结果是预先注定且不可改变的意义上持宿命论。家庭成员采取精神和世俗行动,以确保为孩子提供尽可能好的家庭和专业照料,并代表孩子和家庭寻求影响上帝的善意。