Make B
National Jewish Center for Immunology & Respiratory Medicine, Denver, CO 80206.
Respir Care. 1994 May;39(5):566-79; discussion 579-83.
The effectiveness of collaborative self-management of respiratory disorders has been most clearly demonstrated in asthma. In both adults and children with severe asthma requiring emergency care and hospitalizations, collaborative self-management can decrease not only the need for emergency care and hospitalization but also time lost from work and school, thereby increasing the patients' ability to be full and active participants in the community. Collaborative self-management is best provided in a comprehensive program that includes ready access to healthcare professionals, education, behavioral therapy, and peak-flow monitoring. The relative value of each of these components and the value of single components applied simultaneously is unclear. In some studies, asthma symptoms and medication adherence have also improved following implementation of collaborative self-management. The available data indicate that collaborative self-management should be considered as a potential therapeutic adjunct in the management of every patient with asthma and should be routinely employed with patients who have severe disease as defined by emergency room use and hospitalizations. Additional investigations should be conducted in patients with other respiratory diseases to define the role of collaborative self-management. Nonetheless, state-of-the-art medical care and the nature of the patient-physician relationship in the 1990s dictates that collaborative self-management be routinely employed in the optimal outpatient management of any individual who is interested in participating in his or her own healthcare. However, individualization of the practitioner-patient relationship is necessary. Not all patients desire to play an active role in their illness and its management. The personality, attitudes, and desires of individuals in assisting in their own management must be assessed. Theory would suggest that patients who do not appear to have an interest in self-management may have low self-efficacy that may be increased by educational efforts. Improved self-efficacy and active participation in disease management may result in beneficial outcomes. It is clear that the physician-patient relationship has changed over the past decade. As patients have been empowered to act in their own best interests, the physician's role as an educator and facilitator has become more prominent than ever. Even if medical investigations had not demonstrated any beneficial effects of collaborative self-management, patients have the right to participate in decisions affecting their healthcare and are increasingly exercising that right. Respiratory care practitioners are in a unique position to enhance collaborative self-management. In the home environment, RCPs can foster smoking cessation and serve as a liaison between patients and physicians.(ABSTRACT TRUNCATED AT 400 WORDS)
呼吸疾病的协作式自我管理的有效性在哮喘治疗中体现得最为明显。在患有严重哮喘需要紧急护理和住院治疗的成人及儿童中,协作式自我管理不仅可以减少紧急护理和住院需求,还能减少工作和学业上的时间损失,从而增强患者充分且积极参与社区生活的能力。协作式自我管理最好通过一个综合项目来提供,该项目包括方便就医、教育、行为疗法以及峰值流量监测。这些组成部分各自的相对价值以及同时应用单个组成部分的价值尚不清楚。在一些研究中,实施协作式自我管理后,哮喘症状和药物依从性也有所改善。现有数据表明,协作式自我管理应被视为哮喘患者管理中的一种潜在治疗辅助手段,对于那些因需急诊和住院而被定义为患有严重疾病的患者应常规采用。应针对其他呼吸系统疾病患者开展更多研究,以明确协作式自我管理的作用。尽管如此,20世纪90年代的先进医疗护理以及医患关系的性质决定,对于任何有兴趣参与自身医疗保健的个体,在最佳门诊管理中应常规采用协作式自我管理。然而,医患关系需要个体化。并非所有患者都希望在自身疾病及其管理中发挥积极作用。必须评估个体在协助自身管理方面的个性、态度和意愿。理论表明,那些似乎对自我管理不感兴趣的患者可能自我效能较低,而教育努力可能会提高其自我效能。自我效能的提高以及对疾病管理的积极参与可能会带来有益结果。显然,在过去十年中,医患关系发生了变化。随着患者被赋予为自身最佳利益采取行动的权力,医生作为教育者和促进者的角色比以往任何时候都更加突出。即使医学研究没有证明协作式自我管理有任何有益效果,患者也有权参与影响其医疗保健的决策,并且越来越多地行使这一权利。呼吸护理从业者在加强协作式自我管理方面具有独特地位。在家庭环境中,呼吸护理从业者可以促进戒烟,并充当患者与医生之间的联络人。(摘要截选至400字)