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关于发育障碍儿童诊断及建议的家长-专业人员协议

Parent-professional agreement on diagnosis and recommendations for children with developmental disorders.

作者信息

Ho H H, Miller A, Armstrong R W

机构信息

Department of Pediatrics, University of British Columbia.

出版信息

Child Health Care. 1994 Spring;23(2):137-48. doi: 10.1207/s15326888chc2302_6.

DOI:10.1207/s15326888chc2302_6
PMID:10146014
Abstract

Twenty-eight children with developmental disorders underwent an interdisciplinary assessment for diagnosis and recommendations about management. Following this assessment, the degree of agreement on diagnosis and recommendations between parents and the team was determined. There was substantial agreement for diagnosis of clearly identifiable conditions such as genetic disorders, autism, and mental retardation but less agreement for milder disorders such as learning disabilities, attention deficit disorder, and emotional disorders. Agreement on management varied, being higher for speech therapy and psychosocial interventions but lower for use of stimulant medication and diet. The parents identified additional diagnostic labels in their child and mentioned more recommendations than the clinicians prescribed. The results suggest the need for careful attention to parent perceptions following interdisciplinary assessment.

摘要

28名发育障碍儿童接受了跨学科评估,以进行诊断并就管理提出建议。此次评估之后,确定了家长与团队在诊断和建议方面的一致程度。对于诸如遗传疾病、自闭症和智力迟钝等可明确识别的病症的诊断,达成了高度一致,但对于学习障碍、注意力缺陷障碍和情绪障碍等较轻病症的诊断,一致程度较低。在管理方面的一致性各不相同,言语治疗和心理社会干预方面的一致性较高,但在使用刺激性药物和饮食方面的一致性较低。家长们为自己的孩子确定了额外的诊断标签,并提及了比临床医生所开更多的建议。结果表明,跨学科评估后需要仔细关注家长的看法。

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Parent and professional agreement on cognitive level of children with autism.家长与专业人士对自闭症儿童认知水平的共识。
J Autism Dev Disord. 2002 Aug;32(4):307-12. doi: 10.1023/a:1016382819186.