Occupational Therapy Service, Glenrose Rehabilitation Hospital, Edmonton, Alberta, Canada.
Phys Occup Ther Pediatr. 2011 May;31(2):120-32. doi: 10.3109/01942638.2010.523450. Epub 2010 Oct 13.
ABSTRACT This descriptive qualitative study facilitates the application of family-centered care within a tertiary care interdisciplinary neurodevelopmental diagnostic assessment clinic by furthering an understanding of parent perceptions of the relevance of diagnostic information provision. An interdisciplinary assessment team completed an open-ended questionnaire to describe parent information provision. Parents from 9 families completed in-depth parent interviews following clinic attendance to discuss perceptions of information received. Interviews were audiotaped, transcribed, and coded by related themes. Parents did not perceive the information in the way professionals expected. Parents acknowledged receipt of comprehensive information relevant to the diagnosis but indicated that not all their needs were met. During the interviews, parents described the assessment process, preassessment information, and "steps in their journey." They noted that a strength-based approach and a focus on parental competency would support their coping efforts. Results underscore the need for professionals to be attentive to parents' individualized needs.
摘要 本描述性定性研究通过进一步了解家长对诊断信息提供的相关性的看法，促进了以家庭为中心的护理在三级保健跨学科神经发育诊断评估诊所的应用。一个跨学科评估小组完成了一份开放式问卷，以描述家长提供的信息。9 个家庭的家长在就诊后完成了深入的家长访谈，以讨论对所收到信息的看法。采访被录音、转录并按照相关主题进行编码。家长并没有像专业人士期望的那样看待这些信息。家长承认收到了与诊断相关的全面信息，但表示他们的需求并未得到满足。在访谈中，家长描述了评估过程、评估前信息以及“他们的就诊过程”。他们指出，以优势为基础的方法和关注父母的能力将支持他们应对的努力。研究结果强调了专业人员关注家长个性化需求的必要性。
