Leonard B J, Johnson A L, Brust J D
University of Minnesota, School of Nursing, Minneapolis 55455.
Child Health Care. 1993 Spring;22(2):93-105. doi: 10.1207/s15326888chc2202_2.
A survey was mailed to caregivers of children with disabilities to ascertain how they were managing caregiving. Caregivers reporting they were managing "OK" were compared to those who reported they needed more help or could not manage much longer ("not OK"). Results showed the not OK group of caregivers had children who were more severely impaired and functionally dependent. Their mothers were in poorer physical and mental health, had greater demands placed on their time and finances, and received less emotional support from friends and family. Special programs provided some assistance but not enough to meet their needs.
一项调查被邮寄给残疾儿童的照料者，以确定他们是如何管理照料工作的。将报告自己管理“尚可”的照料者与那些报告自己需要更多帮助或无法再坚持很久（“不可”）的照料者进行比较。结果显示，“不可”组的照料者所照料的儿童受损更严重且功能上更依赖他人。他们的母亲身心健康状况较差，时间和经济上的需求更大，并且从朋友和家人那里得到的情感支持更少。特殊项目提供了一些帮助，但不足以满足他们的需求。
