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基因歧视:亨廷顿舞蹈症与《美国残疾人法案》

Genetic discrimination: Huntington's disease and the Americans with Disabilities Act.

作者信息

Gin B R

出版信息

Columbia Law Rev. 1997 Jun;97(5):1406-34.

Abstract

This Note discusses the potential for genetic discrimination, current views as to whether genetic conditions will be covered by the Americans with Disabilities Act ("ADA"), and the specific issue of whether presymptomatic persons who test positive for Huntington's disease should be classified as persons with a "disability" within the meaning of the ADA. In considering whether presymptomatic Huntington's individuals have a disability under the ADA, an analogy is made between Huntington's disease and HIV-positive status. Inter alia, Huntington's disease and HIV-positive status are analogous in that, at the time of diagnosis, victims of both diseases may have no symptoms and may remain healthy for a number of years; but even though the exact time of onset of both diseases is unascertainable, death of both victims within a given range of years is highly likely. Further, both Huntington's disease and HIV are transmitted to offspring at a relatively high rate. Given these similarities, the author argues that Huntington's individuals should be afforded the protections of the ADA for the same reasons that HIV-positive persons are protected.

摘要

本注释讨论了基因歧视的可能性、关于《美国残疾人法案》(“ADA”)是否涵盖基因疾病的当前观点,以及对于亨廷顿舞蹈症检测呈阳性的症状前患者是否应被归类为ADA意义上的“残疾人”这一具体问题。在考虑症状前的亨廷顿舞蹈症患者是否根据ADA属于残疾人时,文中将亨廷顿舞蹈症与HIV阳性状况进行了类比。特别地,亨廷顿舞蹈症和HIV阳性状况具有相似之处,即在诊断时,这两种疾病的患者可能都没有症状,并且可能在数年里保持健康;但是尽管这两种疾病的确切发病时间都无法确定,但两种疾病的患者在特定年限内死亡的可能性都很高。此外,亨廷顿舞蹈症和HIV都以相对较高的比率遗传给后代。鉴于这些相似性,作者认为,亨廷顿舞蹈症患者应与HIV阳性者出于相同原因而受到ADA的保护。

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