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[唇腭裂的综合治疗。治疗团队的组建]

[Integrated treatment of cleft lip and palate. Organization of a treatment team].

作者信息

Sánchez-Ruiz I, González Landa G, Pérez González V, Díez Rodríguez R, López-Cedrún J L, Miró Viar J, García Miñaur S, de Celis Vara R, Sánchez Fernández L

机构信息

Servicio de Cirugía Infantil, Hospital de Cruces, Baracaldo, Vizcaya.

出版信息

Cir Pediatr. 1999 Jan;12(1):4-10.

PMID:10198542
Abstract

OBJECTIVE

Collect the team experience in the treatment of children with cleft lip and palate, indicating the evolution of the team composition, advantages and improvement aspects, trying to transmit the need of team treatment.

METHOD

The Bilbao cleft palate team was created in 1983, since then a cleft palate clinic, a parents group and a unit of velopharyngeal function has been developed. At present the team is composed by: pediatric reconstructor surgeon, speech therapist, orthodontist, dentist, pediatrician, ENT, maxillofacial surgeon, dismorphologyst, geneticist, nursing.

RESULTS

One of the achievements has been the data unification, obtaining speech cephalometrics, photographic dental casts and video images with prospective view. At this time 403 cleft lip and palate children have been intervened, being essential the transdisciplinar team approach between surgeon, speech therapist and orthodontist. The importance of the team coordinator is pointed. The results of an audit of the two stage cleft palate closure in complete unilateral cleft lip and palate have obligated us to vary our surgical policy. The unresolved aspects are the lack of multidisciplinary team recognition at official level and the non existence of orthodontist in staff, without cost coverage of this treatment by public health system.

CONCLUSIONS

In our experience the team treatment of cleft lip and palate has resulted in improvement of the clinic results, treatment protocols and training.

摘要

目的

收集唇腭裂患儿治疗团队的经验,阐述团队构成的演变、优势及改进方向,传达团队治疗的必要性。

方法

毕尔巴鄂腭裂治疗团队成立于1983年,自那时起发展了腭裂诊所、家长团体及腭咽功能科室。目前团队由小儿重建外科医生、言语治疗师、正畸医生、牙医、儿科医生、耳鼻喉科医生、颌面外科医生、畸形学家、遗传学家、护士组成。

结果

成果之一是数据统一,获取了语音头影测量、牙齿石膏模型照片及前瞻性视频图像。此时已对403例唇腭裂患儿进行了干预,外科医生、言语治疗师和正畸医生之间跨学科团队协作至关重要。指出了团队协调员的重要性。对完全性单侧唇腭裂两阶段腭裂修复术的审核结果促使我们改变手术策略。未解决的问题是官方层面缺乏对多学科团队的认可,且团队中没有正畸医生,公共卫生系统未涵盖该治疗费用。

结论

根据我们的经验,唇腭裂的团队治疗已使临床效果、治疗方案及培训得到改善。

相似文献

1
[Integrated treatment of cleft lip and palate. Organization of a treatment team].[唇腭裂的综合治疗。治疗团队的组建]
Cir Pediatr. 1999 Jan;12(1):4-10.
2
[Results of a questionnaire on the treatment of cleft lip and palate in Spain].[西班牙唇腭裂治疗问卷调查结果]
Cir Pediatr. 1999 Jul;12(3):122-6.
3
The team approach to treatment of the cleft lip and palate.唇腭裂治疗的团队协作方法。
Am Fam Physician. 1978 Jul;18(1):74-84.
4
Audit of a multidisciplinary approach to the care of children with unilateral and bilateral cleft lip and palate.单侧和双侧唇腭裂患儿多学科护理方法的审计
Br J Oral Maxillofac Surg. 2001 Jun;39(3):182-8. doi: 10.1054/bjom.2000.0574.
5
Long-term follow-up of UCLP at the Reine Fabiola Children's Hospital.在女王法比奥拉儿童医院对单侧完全性唇腭裂进行长期随访。
B-ENT. 2006;2 Suppl 4:44-50.
6
Management of children with clefts of the lip or palate: an overview.唇腭裂患儿的管理:概述
N Z Dent J. 1999 Mar;95(419):14-20.
7
Prosthetic assessment in cleft lip and palate patients: a case report with oronasal communication.唇腭裂患者的假体评估:一例口鼻瘘病例报告
Med Oral Patol Oral Cir Bucal. 2006 Nov 1;11(6):E493-6.
8
[Treatment of cleft lip and palate in Finland].[芬兰唇腭裂的治疗]
Duodecim. 2010;126(11):1286-94.
9
Implementation of standardized medical photography for cleft lip and palate audit.唇腭裂审核中标准化医学摄影的实施
J Audiov Media Med. 2004 Dec;27(4):154-60. doi: 10.1080/01405110500038837.
10
Care of adolescents with cleft lip and palate: the role of the general dental practitioner.唇腭裂青少年的护理:全科牙医的作用。
Int Dent J. 1986 Sep;36(3):120-30.

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