Enyert G, Burman M E
Radiation Oncology Department, Wyoming Cancer Center, Casper, USA.
Am J Hosp Palliat Care. 1999 Mar-Apr;16(2):455-62. doi: 10.1177/104990919901600207.
Despite changes in social and cultural structure, the family has remained a consistent provider of in-home care needs for the chronically and terminally ill. The experience of a terminal illness is not limited to the individual patient and creates a myriad of challenges for the family, including the struggle to adjust and respond to the demands of the situation. The purpose of this study was to assess the caregivers' sense of emotional well being and their ability to transcend and find meaning in the caregiving experience. The participants in this study were all caregivers of a family member who had died six to 12 months prior to the interview. They were able to find meaning as a result of their caregiving experience within the context of supportive networks, caregiving actions, grief and loss, fatigue, financial burdens and multiple challenges. Finding meaning involved "being with" or "doing for" their loved one as death approached. Finding meaning had positive consequences for the caregivers. They described a new life view and were able to reach out to help others as a result of their caregiving.
尽管社会和文化结构发生了变化，但家庭仍然一直是慢性病患者和绝症患者居家护理需求的提供者。绝症患者的经历并不局限于患者个人，还给家庭带来了无数挑战，包括努力适应并应对这种情况的要求。本研究的目的是评估护理人员的情感幸福感以及他们在护理经历中超越自我并找到意义的能力。本研究的参与者均为在访谈前六至十二个月内家庭成员已去世的护理人员。他们能够在支持性网络、护理行动、悲伤与失落、疲劳、经济负担和多重挑战的背景下，从自己的护理经历中找到意义。找到意义包括在亲人临近死亡时 “陪伴” 或 “为其付出”。找到意义对护理人员有积极影响。他们描述了一种新的人生观，并因护理经历而能够伸出援手帮助他人。
