Stajduhar K I, Davies B
University of British Columbia School of Nursing, Vancouver, Canada.
J Palliat Care. 1998 Summer;14(2):14-22.
This study explored the day-to-day experiences of family members providing care at home for their dying loved one with HIV/AIDS. In-depth interviews with seven caregivers were analyzed using grounded theory qualitative methods. A conceptualization of the family caregiving experience portrays HIV/AIDS caregiving as an intense, emotional, and powerful experience filled with pride and enrichment, and conversely, with anger and disillusionment. Findings reflected a significant need for interventions designed to provide direct and effective support for family members caring for a loved one with HIV/AIDS.
本研究探讨了家庭成员在家中照顾身患艾滋病毒/艾滋病且生命垂危的亲人的日常经历。运用扎根理论定性方法对七位照顾者进行了深入访谈并加以分析。对家庭照顾经历的一种概念化描述将艾滋病毒/艾滋病照顾描绘成一种强烈、充满情感且有力的经历，既充满自豪与充实感，反之，也伴有愤怒与幻灭感。研究结果反映出，迫切需要开展干预措施，为照顾身患艾滋病毒/艾滋病亲人的家庭成员提供直接且有效的支持。
