Carnevale F A
Intensive Care Unit, Montreal Children's Hospital, Quebec.
Off J Can Assoc Crit Care Nurs. 1999 Spring;10(1):16-22.
The aim of this practice-based phenomenological study was to examine the experience of families with a critically ill child. Ten families were studied for a minimum of four months and a maximum of five years following the onset of a child's critical illness. 'Striving to recapture our previous life' was the central (systemic) phenomenon that characterized the overall struggles of these families. A number of specific phenomena were identified that related to the particular experiences of parents, siblings, and critically ill children. The findings of this study raise significant implications for the development of support strategies for these families.
这项基于实践的现象学研究的目的是考察有危重症患儿家庭的经历。在患儿危重症发作后,对10个家庭进行了研究,研究时长最短为4个月,最长为5年。“努力重拾我们以前的生活”是一个核心(系统性)现象,它刻画了这些家庭的整体挣扎。研究还识别出了一些与父母、兄弟姐妹以及危重症患儿的特定经历相关的具体现象。本研究的结果对为这些家庭制定支持策略具有重要意义。