Colville Gillian, Darkins Janet, Hesketh Janet, Bennett Virginia, Alcock John, Noyes Jane
Paediatric Psychology Service, 2nd Floor Clare House, St George's Hospital, London SW17 0QT, United Kingdom.
Intensive Crit Care Nurs. 2009 Apr;25(2):72-9. doi: 10.1016/j.iccn.2008.10.002. Epub 2008 Nov 18.
In this study, parents were asked which aspects of their experience of having a child in intensive care had caused them the most distress and how they continued to be affected by these experiences.
Semi-structured interviews held with 32 mothers and 18 fathers of children admitted to a paediatric intensive care unit 8 months earlier, were audiotaped, transcribed and subjected to a thematic analysis.
The setting was an eight-bed paediatric intensive care unit in an inner city teaching hospital.
Significant themes included the vividness of parents' memories of admission; the intensity of distress associated with times of transition and the lasting impact of their experience, in terms both of the ongoing need to protect their child and in relation to their priorities in life. Fathers reported different coping strategies, spent less time on the unit and were less likely than mothers to report fearing that their child would die.
Parents report significant and persisting distress. Further research is needed on how best to support them acutely and in the longer term.
在本研究中，我们询问了父母，在重症监护病房照顾孩子的经历中，哪些方面给他们带来了最大的痛苦，以及这些经历如何持续影响着他们。
对8个月前入住儿科重症监护病房的孩子的32位母亲和18位父亲进行了半结构化访谈，并对访谈进行了录音、转录和主题分析。
研究背景是市中心一家教学医院的一个有8张床位的儿科重症监护病房。
重要主题包括父母对孩子入院记忆的生动程度；与过渡时期相关的痛苦强度以及他们经历的持久影响，这既体现在持续需要保护孩子方面，也体现在他们生活的优先事项方面。父亲们报告了不同的应对策略，在病房花费的时间较少，并且比母亲们更不容易报告担心孩子会死亡。
父母报告了严重且持续的痛苦。需要进一步研究如何在急性期和长期内最好地支持他们。
