Suppr超能文献

种族与对维持生命技术的态度。

Ethnicity and attitudes towards life sustaining technology.

作者信息

Blackhall L J, Frank G, Murphy S T, Michel V, Palmer J M, Azen S P

机构信息

Pacific Center for Health Policy and Ethics and Department of Medicine, University of Southern California School of Medicine, Los Angeles 90033, USA.

出版信息

Soc Sci Med. 1999 Jun;48(12):1779-89. doi: 10.1016/s0277-9536(99)00077-5.

Abstract

The ethical and legal implications of decisions to withhold and withdraw life support have been widely debated. Making end-of-life decisions is never easy, and when the cultural background of doctor and patient differ, communication about these issues may become even more difficult. In this study, we examined the attitudes of people aged 65 and older from different ethnic groups toward foregoing life support. To this end, we conducted a survey of 200 respondents from each of four ethnic groups: European-American, African-American, Korean-American and Mexican-American (800 total), followed by in-depth ethnographic interviews with 80 respondents. European-Americans were the least likely to both accept and want life-support (p < 0.001). Mexican-Americans were generally more positive about the use of life-support and were more likely to personally want such treatments (p < 0.001). Ethnographic interviews revealed that this was due to their belief that life-support would not be suggested if a case was truly hopeless. Compared to European-Americans, Korean-Americans were very positive regarding life-support (RR = 6.7, p < 0.0001); however, they did not want such technology personally (RR = 1.2, p = 0.45). Ethnographic interviews revealed that the decision of life support would be made by their family. Compared to European-Americans, African-Americans felt that it was generally acceptable to withhold or withdraw life-support (RR = 1.6, p = 0.06), but were the most likely to want to be kept alive on life-support (RR = 2.1, p = 0.002). Ethnographic interviews documented a deep distrust towards the health care system and a fear that health care was based on one's ability to pay. We concluded that (a) ethnicity is strongly related to attitudes toward and personal wishes for the use of life support in the event of coma or terminal illness, and (b) this relationship was complex and in some cases, contradictory.

摘要

关于停止和撤销生命维持治疗决策的伦理和法律影响一直备受广泛争议。做出临终决策绝非易事,当医生和患者的文化背景不同时,围绕这些问题的沟通可能会变得更加困难。在本研究中,我们调查了65岁及以上不同种族人群对放弃生命维持治疗的态度。为此,我们对四个种族群体(欧裔美国人、非裔美国人、韩裔美国人和墨西哥裔美国人,共800人)中的每组200名受访者进行了调查,随后对80名受访者进行了深入的人种学访谈。欧裔美国人接受并希望进行生命维持治疗的可能性最小(p < 0.001)。墨西哥裔美国人总体上对使用生命维持治疗更为积极,且更有可能个人希望接受此类治疗(p < 0.001)。人种学访谈表明,这是因为他们相信如果病情确实无望,就不会有人建议进行生命维持治疗。与欧裔美国人相比,韩裔美国人对生命维持治疗非常积极(相对风险 = 6.7,p < 0.0001);然而,他们个人并不希望使用此类技术(相对风险 = 1.2,p = 0.45)。人种学访谈表明,生命维持治疗的决策将由其家人做出。与欧裔美国人相比,非裔美国人认为停止或撤销生命维持治疗总体上是可以接受的(相对风险 = 1.6,p = 0.06),但他们最希望通过生命维持治疗维持生命(相对风险 = 2.1,p = 0.002)。人种学访谈记录了对医疗保健系统的深深不信任以及对医疗保健基于支付能力的担忧。我们得出结论:(a)种族与昏迷或绝症情况下对使用生命维持治疗的态度和个人意愿密切相关,(b)这种关系很复杂,在某些情况下相互矛盾。

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验