Cuervo L G, Roca S, Rodríguez M N, Stein J, Izquierdo J, Trujillo A, Mora M
Universidad Javeriana, School of Medicine, Clinical Epidemiology Research and Training Center, Santa Fe de Bogotá, Colombia.
Rev Panam Salud Publica. 1999 Sep;6(3):202-6. doi: 10.1590/s1020-49891999000800008.
The four primary objectives of this descriptive study were to: 1) design a quality-measurement instrument for institutional cancer registries (ICRs), 2) evaluate the existing ICRs in Colombia with the designed instrument, 3) categorize the different registries according to their quality and prioritize efforts that will efficiently promote better registries with the limited resources available, and 4) determine the institution with the greatest likelihood of successfully establishing Colombia's second population-based cancer registry. In 1990 the National Cancer Institute of Colombia developed 13 institution-based cancer registries in different Colombian cities in order to promote the collection of data from a large group of cancer diagnostic and treatment centers. During the first half of 1997, this evaluation reviewed 12 registries; one of the original 13 no longer existed. All of the Colombian institutions (hospitals) that maintain institution-based cancer registries were included in the study. At each institution, a brief survey was administered to the hospital director, the registry coordinator, and the registrar (data manager). Researchers investigated the institutions by looking at six domains that are in standard use internationally. Within each domain, questions were developed and selected through the Delphi method. Each domain and each question were assigned weights through a consensus process. In most cases, two interviewers went to each site to collect the information. The university hospitals in Cali, Pereira, and Medellín had substantially higher scores, reflecting a good level of performance. Four of the 12 institutions had almost no cancer registry work going on. Five of the 12 hospital directors considered that the information provided by the cancer registries influenced their administrative decisions. Three of the registries had patient survival data. Four of the institutions allocated specific resources to operate their cancer registries; in the other 8 hospitals there was no clear budget allocation. Seven of the hospital directors could not identify five or more objectives of a cancer registry. Data management was usually poor and resources insufficient at most of the institutions. In summary, the cancer registry system in Colombia varies greatly from institution to institution. A few of the hospitals do a good job while others have neglected the registries. The high, identical total scores for Pereira and Medellín suggest they would be good locations to establish new population-based cancer registries similar to the existing one in Cali. However, the overall characteristics in Pereira may provide a more appropriate environment for the second registry, with Medellín as an alternative.
1）为机构癌症登记处（ICR）设计一种质量测量工具；2）使用所设计的工具评估哥伦比亚现有的ICR；3）根据质量对不同的登记处进行分类，并在可用资源有限的情况下，优先开展能有效促进建立更好登记处的工作；4）确定最有可能成功建立哥伦比亚第二个基于人群的癌症登记处的机构。1990年，哥伦比亚国家癌症研究所（National Cancer Institute of Colombia）在哥伦比亚不同城市建立了13个基于机构的癌症登记处，以促进从大量癌症诊断和治疗中心收集数据。在1997年上半年，该评估审查了12个登记处；最初的13个登记处中有一个已不存在。所有维护基于机构的癌症登记处的哥伦比亚机构（医院）都纳入了该研究。在每个机构，对医院院长、登记处协调员和登记员（数据管理员）进行了简短调查。研究人员通过考察国际上标准使用的六个领域来调查这些机构。在每个领域内，通过德尔菲法（Delphi method）制定并选择问题。通过协商一致的过程为每个领域和每个问题分配权重。在大多数情况下，两名访谈员前往每个地点收集信息。卡利、佩雷拉和麦德林的大学医院得分显著更高，反映出良好的绩效水平。12个机构中有4个几乎没有癌症登记工作在进行。12名医院院长中有5名认为癌症登记处提供的信息影响了他们的行政决策。12个登记处中有3个有患者生存数据。12个机构中有4个为运营其癌症登记处分配了特定资源；在其他8家医院，没有明确的预算分配。7名医院院长无法确定癌症登记处的五个或更多目标。大多数机构的数据管理通常较差，资源不足。总之，哥伦比亚的癌症登记系统在不同机构之间差异很大。一些医院工作出色，而其他医院则忽视了登记处。佩雷拉和麦德林相同的高分表明，它们将是建立类似于卡利现有登记处的新的基于人群的癌症登记处的理想地点。然而，佩雷拉的整体特征可能为第二个登记处提供更合适的环境，麦德林作为备选。
