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处于阴影之中:慢性病对患者伴侣的影响。

In the shadow: the impact of chronic illness on the patient's partner.

作者信息

Kuyper M B, Wester F

机构信息

Faculty of Social Sciences, University of Nijmegen, The Netherlands.

出版信息

Qual Health Res. 1998 Mar;8(2):237-53. doi: 10.1177/104973239800800207.

DOI:10.1177/104973239800800207
PMID:10558331
Abstract

This study focuses on the partners of patients with chronic illness. Through intensive interviews with the patients' partners and their general practitioners (GPs), the problems the partners experience are explored and analyzed in terms of the support the GP may provide. A description is given of the main problems partners of chronically ill patients have to cope with and the tasks these imply for their everyday life. The attitude and communication skills of the GP are a key factor in whether he or she will play an important supporting role in the case of chronic illness in the family.

摘要

本研究聚焦于慢性病患者的伴侣。通过对患者伴侣及其全科医生进行深入访谈,从全科医生可能提供的支持角度,探讨并分析了伴侣所经历的问题。描述了慢性病患者伴侣必须应对的主要问题以及这些问题给他们日常生活带来的任务。全科医生的态度和沟通技巧是其在家庭慢性病案例中是否会发挥重要支持作用的关键因素。

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2
A Discourse Analysis: One Caregiver's Voice in End-of-Life Care.话语分析:临终关怀中的一位护理者的声音。
Qual Health Res. 2018 Feb;28(3):346-356. doi: 10.1177/1049732317728916. Epub 2017 Sep 9.
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