Gregory D M, Way C Y, Hutchinson T A, Barrett B J, Parfrey P S
Division of Nephrology at the Health Sciences Centre, St. John's, Newfoundland.
Qual Health Res. 1998 Nov;8(6):764-83. doi: 10.1177/104973239800800604.
A grounded theory methodology was used to explore patients' experiences with end-stage renal disease (ESRD) and hemodialysis. The emerging theory suggests that a "new sense of self" is an emotional/psychological state that fluctuates with the evolving meanings of illness and treatment and perceived quality of supports. The findings indicate that when confronted with this new way of being in the world, the individual becomes cognizant of an uncertain future, continued dependence on life-sustaining technology and the expertise of health care providers, and the demands on and sacrifices incurred by significant others. All aspects of patients' experiences with ESRD and hemodialysis treatment must be considered if health care providers are to facilitate positive health outcomes.
采用扎根理论方法来探究终末期肾病(ESRD)患者及血液透析的经历。新出现的理论表明,“新的自我意识”是一种情感/心理状态,会随着疾病与治疗意义的演变以及所感受到的支持质量而波动。研究结果表明,当面对这种新的处世方式时,个体开始意识到未来的不确定性、对维持生命技术及医疗保健提供者专业知识的持续依赖,以及重要他人所承受的要求和做出的牺牲。如果医疗保健提供者想要促进积极的健康结果,就必须考虑患者在ESRD及血液透析治疗方面的所有经历。