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厄瓜多尔洛哈的晚期慢性肾衰患者的痛苦及其与症状的关系。

The Suffering of Advanced Chronic Renal Patients and Their Relationship with Symptoms in Loja, Ecuador.

机构信息

Health Sciences Department, Private Technical University of Loja, Loja 110107, Ecuador.

Nursing Department, Faculty of Nursing, Physiotherapy and Podiatry, Universidad de Sevilla, C/Avenzoar nº6, 41009 Seville, Spain.

出版信息

Int J Environ Res Public Health. 2021 May 16;18(10):5284. doi: 10.3390/ijerph18105284.

Abstract

Advanced Chronic Kidney Disease (ACKD) supposes a public health problem in Ecuador that requires a comprehensive approach. In view of the scarcity of studies on the subject in this country, the objective of this research was to determine the signs and symptoms associated with the patients' physical, social and psychological spheres that allow properly developing palliative care. A longitudinal, prospective and observational study was conducted with ACKD patients. In order to assess the symptomatic burden and suffering of these patients, the Edmonton Symptom Assessment System Revised: renal (ESAS-r) for renal patients and the Distress Thermometer (DT) were used. The sample consisted of a total of 246 patients. The most common symptoms that affect them, causing them suffering in their daily lives, are those related to well-being, difficulty falling asleep and itching. It is necessary that health professionals adapt care measures and help patients undergoing renal treatment, especially those who have suffered the disease for a longer period of time, in order to alleviate the patients' suffering and therefore improve their daily lives. To such an end, a care plan could be designed that includes early palliative care.

摘要

晚期慢性肾脏病(ACKD)是厄瓜多尔的一个公共卫生问题,需要采取综合方法来解决。鉴于该国对此主题的研究稀缺,本研究的目的是确定与患者身体、社会和心理领域相关的体征和症状,以便能够正确开展姑息治疗。本研究采用了纵向、前瞻性和观察性研究方法,对 ACKD 患者进行了研究。为了评估这些患者的症状负担和痛苦,使用了埃德蒙顿症状评估系统修订版:肾脏(ESAS-r)和痛苦温度计(DT)来评估。该样本共包括 246 名患者。这些患者最常见的症状是那些与幸福感、入睡困难和瘙痒有关的症状,这些症状会导致他们在日常生活中感到痛苦。卫生专业人员有必要调整护理措施,帮助正在接受肾脏治疗的患者,特别是那些已经患病较长时间的患者,以减轻患者的痛苦,从而改善他们的日常生活。为此,可以设计一个护理计划,其中包括早期姑息治疗。

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本文引用的文献

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Palliative Care in Nephrology: The Work and the Workforce.肾脏病学中的缓和医疗:工作与人力。
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