Tamburini M, Gangeri L, Brunelli C, Beltrami E, Boeri P, Borreani C, Fusco Karmann C, Greco M, Miccinesi G, Murru L, Trimigno P
Psychology Division, Istituto Nazionale Tumori, Milan, Italy.
Ann Oncol. 2000 Jan;11(1):31-7. doi: 10.1023/a:1008396930832.
Cancer disease modifies the order and the nature of needs connected with the state of health. The aim of this study was to evaluate the informative, psychological, social and practical needs of hospitalised cancer patients by means of the Needs Evaluation Questionnaire (NEQ), an instrument designed concisely for the convenience of patients and medical staff.
Different samples of consecutive hospitalised cancer patients were involved in the various phases of designing the instrument: 30 patients for items identification, 101 patients for completeness and acceptability evaluation, 423 patients for construct validity and prevalence of needs; content and reliability analysis were performed on 2 subsamples of, respectively, 60 and 88 of the patients from the last sample.
The validation analysis showed rather good reliability, structure validity and internal consistency of the questionnaire. The prevalence analysis showed that the most common needs were: 'more information about my future conditions' (74%); 'more information about my diagnosis' (56%); 'more information about the exams I am undergoing' (52%); 'more explanations on treatments' (51%); 'to have a better dialogue with clinicians' (57%); 'better services from the hospital' (bathrooms, meals, cleaning) (56%).
The NEQ, self-completed by patients, has proven to be a useful clinical tool for obtaining a systematic and undistorted overview of the principal needs with respect to the state of health of patients. This instrument, which can also be administered by persons not belonging to the health care system such as volunteers, and inserted into the patients' hospital charts, could be used by the medical staff to identify the real needs of patients at an early stage.
癌症疾病改变了与健康状况相关的需求顺序和性质。本研究的目的是通过需求评估问卷（NEQ）评估住院癌症患者的信息、心理、社会和实际需求，该问卷是一种为方便患者和医护人员而简洁设计的工具。
连续住院的癌症患者不同样本参与了该工具设计的各个阶段：30名患者用于项目识别，101名患者用于完整性和可接受性评估，423名患者用于结构效度和需求普遍性评估；对最后一个样本中分别为60名和88名患者的2个子样本进行了内容和信度分析。
验证分析表明该问卷具有相当好的信度、结构效度和内部一致性。普遍性分析表明，最常见的需求是：“更多关于我未来状况的信息”（74%）；“更多关于我的诊断的信息”（56%）；“更多关于我正在接受的检查的信息”（52%）；“对治疗有更多解释”（51%）；“与临床医生有更好的沟通”（57%）；“医院提供更好的服务”（浴室、餐饮、清洁）（56%）。
由患者自行填写的NEQ已被证明是一种有用的临床工具，可用于系统、准确地了解患者健康状况方面的主要需求。该工具也可由不属于医疗保健系统的人员（如志愿者）进行管理，并放入患者的医院病历中，医护人员可利用它在早期识别患者的实际需求。
