Spano Alessandro, Petrone Fabrizio, Di Simone Emanuele, De Leo Aurora, Basili Paolo, Terrenato Irene, Picano Maria Antonietta, Piergentili Marco, Paterniani Albina, Iacorossi Laura, Panattoni Nicolò
Department of Biomedicine and Prevention, University of Rome Tor Vergata, 00133 Rome, Italy.
Nursing Research Unit IFO, IRCCS Regina Elena National Cancer Institute, 00144 Rome, Italy.
Diseases. 2025 May 22;13(6):164. doi: 10.3390/diseases13060164.
Patient education (PE) is an integral part of treatment from taking charge to the care, assistance, and rehabilitation of the patient, and consists of structured, organised actions, the orientation of which is aimed at finding solutions supported by scientific evidence.
This prospective, descriptive, exploratory, single-centre pilot study aimed to evaluate the effectiveness of a PE intervention for oncological patients with entero-urostomies and their caregivers through the measurement of quality of life, perceived needs, and caregiver burden.
This study was conducted in a National Cancer Institute between 22 December 2022 and 31 March 2023, and it was organised into three specific therapeutic education event days relative to the real needs measured by the patients and caregivers before it.
Our results seem to suggest that the PE intervention in entero-urostomy patients improves their quality-of-life levels, while caregivers' perceived emotional burden levels are reduced.
Targeted and individualised PE interventions positively affect self-care and quality of life in patients with an entero-urostomy and the emotional burden perceived by caregivers.
患者教育（PE）是从负责患者的治疗到护理、协助和康复过程中不可或缺的一部分，它由结构化、有组织的行动组成，其目的是寻找有科学依据支持的解决方案。
这项前瞻性、描述性、探索性的单中心试点研究旨在通过测量生活质量、感知需求和照顾者负担，评估针对患有肠造口膀胱术的肿瘤患者及其照顾者的患者教育干预措施的有效性。
本研究于2022年12月22日至2023年3月31日在一家国家癌症研究所进行，根据患者和照顾者之前测量的实际需求，组织了三个特定的治疗教育活动日。
我们的结果似乎表明，对肠造口膀胱术患者的患者教育干预可提高他们的生活质量水平，同时降低照顾者感知到的情感负担水平。
有针对性的个性化患者教育干预对肠造口膀胱术患者的自我护理和生活质量以及照顾者感知到的情感负担有积极影响。
