Field D, Copp G
Centre for Cancer and Palliative Care Studies, Royal Marsden NHS Trust, London, UK.
Palliat Med. 1999 Nov;13(6):459-68. doi: 10.1191/026921699668763479.
Since the 1960s communication and awareness about dying in modern western societies have been topics for debate, with a considerable amount of literature on the need for open communication and the strategies which can be used by health professionals to improve their communication with patients facing a terminal prognosis. Despite the difficulties of comparing studies using different methodologies and the additional problems of ascertaining patients' knowledge and awareness about their impending deaths, the trend is clear. In advanced industrial societies there is increasing evidence that doctors have shifted from a policy of 'withholding' to a policy of 'revealing' to the patient his or her terminal prognosis. This change in medical practice is further supported by other data which show an increase in the percentage of those patients who were aware they were dying from chronic diseases, especially cancer. However, despite the perceived trend towards open disclosure of the patient's terminal illness, recent studies have suggested that in their daily encounters with dying patients health workers employ 'conditional' rather than 'full open disclosure'. Such moderating strategies in discussing the patient's prognosis may be employed despite open awareness of a patient's prognosis. This paper examines this apparent paradox by analysing the complex tensions and conflicts of such communication through a discussion of existing literature on modes of communication and patient awareness.
自20世纪60年代以来,现代西方社会中关于死亡的交流与认知一直是备受争议的话题,有大量文献探讨了开放交流的必要性以及医疗专业人员可采用的策略,以改善他们与面临终末期预后的患者之间的沟通。尽管比较使用不同方法的研究存在困难,且确定患者对其即将到来的死亡的认知和了解存在额外问题,但趋势是明显的。在先进工业社会中,越来越多的证据表明医生已从“隐瞒”政策转向“告知”患者其终末期预后的政策。医疗实践中的这一变化得到了其他数据的进一步支持,这些数据显示意识到自己死于慢性疾病(尤其是癌症)的患者比例有所增加。然而,尽管存在向患者公开终末期疾病的明显趋势,但最近的研究表明,医护人员在日常与临终患者接触时采用的是“有条件的”而非“完全公开披露”。尽管对患者的预后有公开认知,但在讨论患者预后时可能会采用这种缓和策略。本文通过讨论关于沟通模式和患者认知的现有文献,分析这种沟通中复杂的紧张关系和冲突,来审视这一明显的矛盾。