Davalbhakta A, Hall P N
Department of Plastic Surgery, Addenbrooke's Hospital, Cambridge, UK.
Br J Plast Surg. 2000 Jun;53(4):298-301. doi: 10.1054/bjps.2000.3330.
Birth of a cleft child is emotionally distressing to the parents. The opportunity for forewarning the parents is now possible with antenatal ultrasound diagnosis of the cleft. This has opened up a new chapter of antenatal counselling. We present a retrospective postal study of 124 primary cleft lip and/or palate repairs operated over the last 5 years. In our study, 30% were diagnosed antenatally and received antenatal counselling. The rest received postnatal counselling. Of those who had an antenatal diagnosis 85% felt that the diagnosis prepared them psychologically for the birth of the cleft child. A total of 92% (n = 23) of parents who had antenatal as well as postnatal counselling, as compared with 71% (n = 46) of those counselled only postnatally, said the information given to them by the counselling cleft team was detailed and satisfactory. The majority of those who felt counselling was confusing had only postnatal counselling. Of those who had antenatal diagnosis 92% said that they had never contemplated termination of pregnancy. Only one parent had actually terminated her pregnancy due solely to the antenatal diagnosis of a bilateral cleft lip and palate. Our study has highlighted the importance of antenatal diagnosis of cleft and the importance of antenatal counselling for the delivery of a cleft child to be a positive experience.
唇腭裂患儿的出生会让父母在情感上备受煎熬。如今，通过产前超声诊断唇腭裂，已能够提前告知父母这一情况。这开启了产前咨询的新篇章。我们对过去5年里进行的124例原发性唇裂和/或腭裂修复手术进行了一项回顾性邮寄研究。在我们的研究中，30%的患儿在产前被诊断出，并接受了产前咨询。其余的则接受了产后咨询。在那些产前被诊断出的患儿中，85%的父母认为该诊断让他们在心理上为唇腭裂患儿的出生做好了准备。与仅接受产后咨询的父母中71%（n = 46）的比例相比，同时接受了产前和产后咨询的父母中，共有92%（n = 23）表示唇腭裂咨询团队提供给他们的信息详细且令人满意。大多数觉得咨询令人困惑的父母仅接受了产后咨询。在那些产前被诊断出的患儿中，92%的父母表示他们从未考虑过终止妊娠。只有一位父母因产前诊断出双侧唇腭裂而实际终止了妊娠。我们的研究强调了唇腭裂产前诊断的重要性，以及产前咨询对于让唇腭裂患儿的出生成为一次积极经历的重要性。
