Berggren Helena, Hansson Emma, Uvemark Annika, Svensson Henry, Becker Magnus
Department of Clinical Sciences in Malmö, Lund University, Plastic and Reconstructive Surgery, Skåne University Hospital, Malmö, Sweden.
J Plast Surg Hand Surg. 2012 Sep;46(3-4):235-41. doi: 10.3109/2000656X.2012.698416.
Since the 1980s, prenatal detection of cleft lip with or without cleft palate (CLP) is possible with a transabdominal ultrasound. The improvement of prenatal detection has resulted in an increased demand for prenatal information and counselling. The aim of this study was to, by means of a questionnaire, evaluate how families, who received the diagnosis prenatally and postnatally, respectively, think about the prenatal and postnatal consultation. Patients referred prenatally or postnatally to the department, due to CLP, between January 2006 and September 2010 were included in the study. Thirty-six of the families (95%) answered the questionnaire concerning prenatal counselling. A total of 46 parents (82%) answered the questionnaire concerning postnatal counselling. In the prenatal group, half of the patients were first informed by the ultrasound unit, whereas 16% were initially informed by the cleft team. More of the families that were informed by the cleft team were content with the information received than the families who were informed by the ultrasound unit. The majority of the families were satisfied with the structure of the consultation. Most of the patients in the postnatal group were happy with the postnatal consultation. Most of the parents in the postnatal group would have wanted to know about the diagnosis prenatally. The great majority of the parents was happy with the consultation with the cleft team and thought that they received enough information. However, the information received at the referring units could be improved. Parents seem to want information on the cleft diagnosis and its treatment as soon as possible.
自20世纪80年代以来，经腹部超声检查可在产前检测出唇裂伴或不伴腭裂（CLP）。产前检测技术的进步导致对产前信息和咨询的需求增加。本研究旨在通过问卷调查，评估分别在产前和产后接受诊断的家庭对产前和产后咨询的看法。2006年1月至2010年9月期间因CLP产前或产后转诊至该科室的患者纳入本研究。36个家庭（95%）回答了有关产前咨询的问卷。共有46位家长（82%）回答了有关产后咨询的问卷。在产前组中，一半的患者首先由超声科室告知，而16%最初由腭裂治疗团队告知。与由超声科室告知的家庭相比，更多由腭裂治疗团队告知的家庭对所获得的信息感到满意。大多数家庭对咨询的结构感到满意。产后组中的大多数患者对产后咨询感到满意。产后组中的大多数家长希望在产前就了解诊断情况。绝大多数家长对与腭裂治疗团队的咨询感到满意，并认为他们获得了足够的信息。然而，在转诊科室所获得的信息仍有待改进。家长似乎希望尽快获得有关腭裂诊断及其治疗的信息。
