Ahlström G, Karlsson U
Research and Development Unit, Psychiatry and Habilitation, Orebro Medical Centre Hospital, Sweden.
Disabil Rehabil. 2000 Jun 15;22(9):416-22. doi: 10.1080/096382800406031.
The purpose of the study is to investigate disability and quality of life in individuals with the characteristic symptoms of postpolio syndrome.
Disability is assessed by means of the self-report activities of daily living instrument, and quality of life by means of Kaasa's questionnaire and the quality of life profile.
The 39 subjects have on average lived with polio sequelae for 52 years. Their main difficulties are with moving, lifting and carrying. This means restricted mobility, sedentary activities and a need to prioritize. Half of them feel that polio has lessened their possibilities in life, and a quarter have still not accepted the limitations polio has involved. Nevertheless the majority report a high level of psychosocial well-being, and almost a quarter say that living with polio has meant personal development and strength. We found a significant correlation between on the one hand disability with regard to ambulation, arm strength and finger strength on the self-report ADL, and on the other hand the number of negative problems on the quality of life profile (0.33-0.45).
The latter instrument needs further testing before its validity can be determined with certainty.
本研究旨在调查患有小儿麻痹后遗症特征性症状的个体的残疾情况和生活质量。
通过自我报告的日常生活活动工具评估残疾情况，通过卡萨问卷和生活质量概况评估生活质量。
39名受试者平均患有小儿麻痹后遗症52年。他们的主要困难在于移动、提举和搬运。这意味着行动受限、久坐活动以及需要进行优先级排序。其中一半人认为小儿麻痹症降低了他们的生活可能性，四分之一的人仍未接受小儿麻痹症所带来的限制。然而，大多数人报告称心理社会幸福感较高，近四分之一的人表示与小儿麻痹症共存意味着个人成长和力量。我们发现，一方面，自我报告的日常生活活动中关于行走、手臂力量和手指力量的残疾情况，与另一方面生活质量概况上的负面问题数量之间存在显著相关性（0.33 - 0.45）。
后一种工具在其有效性能够确定之前需要进一步测试。
