Anderson G W, Monsen R B, Rorty M V
Stanford University Center for Biomedical Ethics, Program in Genomics, Ethics and Society, Palo Alto, CA 94304, USA.
Nurs Ethics. 2000 May;7(3):191-204. doi: 10.1177/096973300000700302.
Genetic information and technologies are increasingly important in health care, not only in technologically advanced countries, but world-wide. Several global factors promise to increase future demand for morally conscious genetic health services and research. Although they are the largest professional group delivering health care world-wide, nurses have not taken the lead in meeting this challenge. Insights from feminist analysis help to illuminate some of the social institutions and cultural obstacles that have impeded the integration of genetics technology into the discipline of nursing. An alternative model is suggested--the transdisciplinary model--which was developed initially by a nurse and introduced in the 1970s into the delivery of health care and social services for children with developmental disabilities. This holistic model enables all health care professionals to have an equal voice in determining how genetic health care will be globalized.
遗传信息和技术在医疗保健领域正变得越来越重要,不仅在技术先进的国家如此,在全球范围内都是如此。几个全球因素预示着未来对符合道德规范的遗传健康服务和研究的需求将会增加。尽管护士是全球提供医疗保健服务的最大专业群体,但他们并未在应对这一挑战方面发挥带头作用。女性主义分析的见解有助于阐明一些阻碍将基因技术融入护理学科的社会制度和文化障碍。本文提出了一种替代模式——跨学科模式,该模式最初由一名护士开发,并于20世纪70年代引入为发育障碍儿童提供医疗保健和社会服务的领域。这种整体模式使所有医疗保健专业人员在决定如何将遗传医疗保健全球化方面都能拥有平等的发言权。