Cliff A M, MacDonagh R P
Taunton and Somerset NHS Trust, University of Bristol, UK.
BJU Int. 2000 Nov;86(7):829-33. doi: 10.1046/j.1464-410x.2000.00913.x.
To design a questionnaire capable of measuring psychosocial morbidity in patients with prostate cancer and in their partners.
Issues to be covered in the questionnaire were determined by discussion among professionals, a literature review and semi-structured interviews with a group of seven patients and their partners. The potential issues were analysed and condensed, then re-presented to a further group of professionals, and to 10 patients and partners for comment and amendment. This process aimed to confirm the completeness and relevance of the list of issues. Questions were then constructed around the final list of issues and the questionnaire adjusted continually while testing on patients, until it was completed easily.
The questionnaire consisted of 10 items; three items related to the general threat of cancer (concern about the diagnosis itself, fear of the future and difficulty dealing with the emotional response to the disease). Two items covered social and role functioning and there were five items to determine the severity of psychological morbidity caused by pain, urinary symptoms, treatment, physical limitation and sexual dysfunction. The questionnaire appeared to cover those areas of morbidity most consistently raised by patients and partners; it was also rapidly and easily completed by most respondents.
The questionnaire constructed may be easily applied as part of routine clinical practice; it addresses aspects of psychosocial morbidity related to prostate cancer in patients and their partners. Although it appears to have content validity, further psychometric testing is required.
设计一份能够测量前列腺癌患者及其伴侣心理社会发病情况的问卷。
通过专业人员之间的讨论、文献综述以及对一组7名患者及其伴侣进行半结构化访谈，确定问卷要涵盖的问题。对潜在问题进行分析和浓缩，然后再次提交给另一组专业人员以及10名患者和伴侣以供评论和修改。这一过程旨在确认问题清单的完整性和相关性。随后围绕最终问题清单构建问题，并在对患者进行测试时持续调整问卷，直到问卷易于完成。
该问卷由10个项目组成；3个项目涉及癌症的总体威胁（对诊断本身的担忧、对未来的恐惧以及应对疾病情绪反应的困难）。2个项目涵盖社会和角色功能，还有5个项目用于确定由疼痛、泌尿系统症状、治疗、身体限制和性功能障碍导致的心理发病严重程度。该问卷似乎涵盖了患者及其伴侣最常提及的发病领域；大多数受访者也能快速轻松地完成问卷。
所构建的问卷可作为常规临床实践的一部分轻松应用；它涉及前列腺癌患者及其伴侣心理社会发病的相关方面。尽管它似乎具有内容效度，但仍需要进一步的心理测量学测试。
