Myers M F, Doksum T, Holtzman N A
Genetics and Public Policy Studies, The Johns Hopkins Medical Institutions, Baltimore, Maryland 21205-2004, USA.
Genet Med. 1999 Sep-Oct;1(6):272-85. doi: 10.1097/00125817-199909000-00006.
To learn the extent to which HMOs and academic genetic centers (1) are involved in predictive genetic tests for common, complex disorders and (2) interact with each other.
Surveys of HMO medical directors and directors of U.S. academic genetic centers.
In 1996, approximately 28% of HMOs were covering predictive tests for breast and colon cancer, but 75% of all medical directors said their HMO would consider policies regarding predictive testing in the next 5 years. Approximately 80% of directors of academic genetic centers said they provided genetic counseling services for common adult-onset disorders for patients covered by managed care organizations (MCOs), but they ranked the volume of services they provide for pediatric and prenatal indications much higher. Most academic genetic centers (72%) have contracts with MCOs.
Although genetic services are being provided by academic genetic centers to patients who are members of managed care organizations, many patients with whom genetic testing for adult onset disorders is discussed may never see a geneticist. Academic genetic centers should educate nongeneticist professionals about the use of tests for common disorders.
了解健康维护组织(HMO)和学术性遗传中心在以下两方面的参与程度:(1)对常见复杂疾病的预测性基因检测;(2)彼此之间的相互作用。
对HMO医疗主任和美国学术性遗传中心主任进行调查。
1996年,约28%的HMO涵盖了乳腺癌和结肠癌的预测性检测,但75%的医疗主任表示他们所在的HMO会在未来5年内考虑制定关于预测性检测的政策。约80%的学术性遗传中心主任表示,他们为管理式医疗组织(MCO)覆盖的患者提供常见成人发病疾病的遗传咨询服务,但他们认为自己为儿科和产前指征提供的服务量要高得多。大多数学术性遗传中心(72%)与MCO签订了合同。
尽管学术性遗传中心正在为管理式医疗组织的成员患者提供遗传服务,但许多讨论成人发病疾病基因检测的患者可能从未见过遗传学家。学术性遗传中心应就常见疾病检测的使用对非遗传专业人员进行教育。