Fischer T W, Schmidt S, Strauss B, Elsner P
Universitäts-Klinik für Dermatologie und Allergologie der Friedrich-Schiller-Universität Jena, Erfurter Strasse 35, 07740 Jena.
Hautarzt. 2001 Mar;52(3):219-27. doi: 10.1007/s001050051293.
Because of a strong reduction of life quality in patients with hair loss, a special questionnaire was developed following the general Skindex questionnaire for dermatoses. The Hairdex was evaluated in 75 female hair patients. The aim of the study was to prove the questionnaire's statistical values, reliability, validity, general acceptance and accuracy. The clinical manifestation of hair loss was categorized as "not visible", slightly visible" and "obviously visible". The hair loss lead to great differences in the life quality of both the patients with obvious hair loss and in patients with non-visible hair loss, especially in the categories "emotions", "self-confidence" and "stigmatization". The convergent and discriminant validity of the questionnaire was satisfactory. The acceptance of the questionnaire was very good with 90%. The hairdex-questionnaire represents a reliable and patient-oriented instrument for evaluation of life quality in hair diseases. The reliability of the questionnaire concerning longitudinal therapeutic effects will need to be investigated in further studies.
由于脱发患者的生活质量大幅下降，在皮肤病通用Skindex问卷的基础上开发了一份特殊问卷。对75名女性脱发患者进行了Hairdex问卷评估。该研究的目的是证明问卷的统计值、可靠性、有效性、普遍接受度和准确性。脱发的临床表现分为“不可见”、“轻微可见”和“明显可见”。脱发导致明显脱发患者和不可见脱发患者的生活质量存在很大差异，尤其是在“情绪”、“自信心”和“污名化”方面。问卷的收敛效度和区分效度令人满意。问卷的接受度非常好，达到了90%。Hairdex问卷是一种可靠且以患者为导向的工具，用于评估毛发疾病患者的生活质量。关于纵向治疗效果的问卷可靠性将需要在进一步研究中进行调查。
