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斑秃 - 生活质量问卷 - 波兰语版本的编制与验证

Alopecia areata - Quality of Life Questionnaire - formation and validation of the Polish version.

作者信息

Otlewska-Szpotowicz Agnieszka, Baran Wojciech, Batycka-Baran Aleksandra

机构信息

Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Wrocław, Poland.

出版信息

Postepy Dermatol Alergol. 2025 Feb;42(1):83-88. doi: 10.5114/ada.2024.146222. Epub 2024 Dec 20.

Abstract

INTRODUCTION

Alopecia areata (AA) is an autoimmune disorder causing non-scarring hair loss. AA impacts individuals' quality of life (QoL), affecting emotional wellbeing, self-esteem, and social interactions, and is associated with mental health issues like depression and anxiety. There is a lack of adequate, validated, disease-specific questionnaires to evaluate the quality of life in Polish-speaking patients with AA.

AIM

Formation and validation of the Polish version of the Alopecia Areata Quality of Life questionnaire (AA-QLI).

MATERIAL AND METHODS

The original English version of the questionnaire was translated into Polish using a forward and backward translation process according to international standards. The validation was conducted on 21 patients suffering from AA, who completed the questionnaire twice with a 5-day interval. To assess internal consistency of the questionnaire the Cronbach α coefficient was used. The reliability of the Polish version of the questionnaire was evaluated using the intraclass correlation coefficient (ICC).

RESULTS

The Polish version of the AA-QLI questionnaire demonstrated good internal consistency with Cronbach α coefficient of 0.86 for the first completion of the questionnaire. The ICC of 0.93 indicated very good reproducibility of this questionnaire.

CONCLUSIONS

The Polish version of the AA-QLI questionnaire showed high internal consistency and reliability, making it a suitable tool for assessing the health-related quality of life in Polish-speaking AA patients.

摘要

引言

斑秃(AA)是一种导致非瘢痕性脱发的自身免疫性疾病。斑秃会影响个人的生活质量(QoL),影响情绪健康、自尊和社交互动,并与抑郁和焦虑等心理健康问题相关。目前缺乏足够的、经过验证的、针对特定疾病的问卷来评估波兰语斑秃患者的生活质量。

目的

编制并验证波兰语版斑秃生活质量问卷(AA-QLI)。

材料与方法

根据国际标准,采用正向和反向翻译流程将问卷的原始英文版翻译成波兰语。对21名斑秃患者进行了验证,他们间隔5天完成两次问卷。使用Cronbach α系数评估问卷的内部一致性。使用组内相关系数(ICC)评估波兰语版问卷的信度。

结果

波兰语版AA-QLI问卷首次完成时的Cronbach α系数为0.86,显示出良好的内部一致性。ICC为0.93表明该问卷具有非常好的可重复性。

结论

波兰语版AA-QLI问卷显示出较高的内部一致性和信度,使其成为评估波兰语斑秃患者健康相关生活质量的合适工具。

相似文献

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Quality of life in alopecia areata: a disease-specific questionnaire.斑秃患者的生活质量:一种疾病特异性问卷。
J Eur Acad Dermatol Venereol. 2013 Mar;27(3):e276-81. doi: 10.1111/j.1468-3083.2012.04629.x. Epub 2012 Jul 3.

本文引用的文献

1
The Invisible Impact of a Visible Disease: Psychosocial Impact of Alopecia Areata.一种显性疾病的隐形影响:斑秃的心理社会影响
Dermatol Ther (Heidelb). 2023 Jul;13(7):1503-1515. doi: 10.1007/s13555-023-00941-z. Epub 2023 Jun 8.
6
Evaluation of Stigma Toward Individuals With Alopecia.脱发患者的污名化评估。
JAMA Dermatol. 2021 Apr 1;157(4):392-398. doi: 10.1001/jamadermatol.2020.5732.
8
Psychological Impact of Alopecia Areata.斑秃的心理影响
Dermatol Res Pract. 2020 Dec 24;2020:8879343. doi: 10.1155/2020/8879343. eCollection 2020.

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