Rivera-Navarro J, Benito-León J, Morales-González J M
Unid. docencia e investigación Medic. Preventiva, Universidad Rey Juan Carlos, Facultad de Ciencias Salud, Alcorcón, 28922, España.
Rev Neurol. 2001;32(8):705-13.
Study of the quality of life in multiple sclerosis (MS) should consider use of an instrument which includes social, psychological, physical and mental aspects. The objective of this study is to show the validated dimensions of the scale of quality of life Functional Assessment of Multiple Sclerosis (FAMS) in the Spanish population, and verify their consistency.
308 patients with MS (clinically defined or with laboratory support, according to Poser s clinical criteria), referred from 10 Neurology Outpatient Clinics of Hospitals of the Autonomic Community of Madrid. The study was of transversal design, and carried out by direct interview. We used a questionnaire containing the FAMS scale and other variables related to different aspects (clinical, social, employment, psychological and cognitive).
The average age was 38.2 +/- 10.5 years with an average score on the Expanded Disability Status Scale (EDSS) of 3.6 +/- 2.3. The average scores of the parameters are lower than those obtained with the original version of FAMS; the internal consistency of these dimensions is slightly higher than those of the original FAMS. The parameters symptoms and general state of mind and also the FAMS in general had their internal consistency increased by the inclusion of eight variables which were originally excluded.
The FAMS scale is more consistent and reliable for the evaluation of quality of life if we include specific variables of MS which do not form part of the American version of the FAMS.
对多发性硬化症(MS)患者生活质量的研究应考虑使用一种涵盖社会、心理、身体和精神方面的工具。本研究的目的是展示西班牙人群中多发性硬化症功能评估生活质量量表(FAMS)经验证的维度,并验证其一致性。
308例MS患者(根据波泽临床标准临床确诊或有实验室支持),来自马德里自治区医院的10个神经内科门诊。本研究采用横断面设计,通过直接访谈进行。我们使用了一份包含FAMS量表以及与不同方面(临床、社会、就业、心理和认知)相关的其他变量的问卷。
平均年龄为38.2±10.5岁,扩展残疾状态量表(EDSS)平均得分为3.6±2.3。这些参数的平均得分低于FAMS原始版本获得的得分;这些维度的内部一致性略高于原始FAMS。通过纳入最初排除的8个变量,参数症状和总体心理状态以及总体FAMS的内部一致性有所提高。
如果我们纳入不属于美国版FAMS的MS特定变量,FAMS量表在评估生活质量方面更具一致性和可靠性。