[德国皮肤病生活质量评估工具（DIELH）。内部一致性、可靠性、收敛效度和区分效度以及反应性]

[German instrument for the assessment of quality of life in skin diseases (DIELH). Internal consistency, reliability, convergent and discriminant validity and responsiveness].

作者信息

Schäfer T, Staudt A, Ring J

机构信息

Klinik und Poliklinik für Dermatologie und Allergologie-am Biederstein-der Technischen Universität München, Biedersteiner Strasse 29, 80802 München.

出版信息

Hautarzt. 2001 Jul;52(7):624-8. doi: 10.1007/s001050170102.

DOI:10.1007/s001050170102

PMID:11475643

Abstract

BACKGROUND AND OBJECTIVE

Performance and psychometric testing of the German Instrument for the Assessment of Quality of Life in Skin Diseases (DIELH).

PATIENTS/METHODS: The instrument consisting of 36 questions (maximum skore 180, 7 domains) was used in 836 outpatients and quality assessments (validity, reliability, responsiveness) were performed.

RESULTS

The total skore had a mean of 54 pts. (STD 31, range 0-157) and was normally distributed. Women reported a higher impact on quality of life (median 56 vs. 49, p < 0.001). In terms of discriminant validity significant differences between diagnostic groups were observed with high scorings for patients with eczema, psoriasis, urticaria, and acne (p < 0.001). Tests for internal consistency (Cronbach's alpha 0.71-0.92) and reliability (r = 0.73-0.86) revealed valid results. The DIELH correlated well with the DLQI (r = 0.78, p < 0.001) and moderately with 3 domains of the SF 36 (r = 0.25-0.30, p < 0.01). Changes in the quality of life after 4 weeks were consistent with the corresponding changes of the skin condition and partially significant.

CONCLUSIONS

In the use within a large patient sample the DIELH proved to be feasible, valid, reliable, and responsive.

摘要

背景与目的

德国皮肤病生活质量评估工具（DIELH）的性能及心理测量学测试。

患者/方法：该工具由36个问题组成（最高得分180分，7个领域），对836名门诊患者进行了使用，并进行了质量评估（效度、信度、反应度）。

结果

总分均值为54分（标准差31，范围0 - 157），呈正态分布。女性报告生活质量受影响程度更高（中位数56对49，p < 0.001）。在判别效度方面，观察到诊断组之间存在显著差异，湿疹、银屑病、荨麻疹和痤疮患者得分较高（p < 0.001）。内部一致性检验（Cronbach's alpha 0.71 - 0.92）和信度检验（r = 0.73 - 0.86）结果有效。DIELH与DLQI相关性良好（r = 0.78，p < 0.001），与SF - 36的3个领域中度相关（r = 0.25 - 0.30，p < 0.01）。4周后生活质量的变化与皮肤状况的相应变化一致，且部分具有显著性。