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[银屑病和特应性皮炎患者的污名化与生活质量]

[Stigmatization and quality of life of patients with psoriasis and atopic dermatitis].

作者信息

Schmid-Ott G, Burchard R, Niederauer H H, Lamprecht F, Künsebeck H-W

机构信息

Abteilung Psychosomatik und Psychotherapie der Medizinischen Hochschule Hannover.

出版信息

Hautarzt. 2003 Sep;54(9):852-7. doi: 10.1007/s00105-003-0539-9. Epub 2003 Jul 1.

Abstract

BACKGROUND AND OBJECTIVE

Psoriasis and atopic dermatitis patients are often influenced by the psychosocial consequences of their skin diseases. In order to assess these experiences reliably, the stigmatization feeling and the quality of life of these patient groups were studied.

PATIENTS/METHODS: The short form of the "Questionnaire on Experience with Skin Complaints" (QES) was validated in a sample of 463 in-patients with psoriasis and atopic dermatitis. In addition, the Dermatology Life Quality Index (DLQI) was ascertained.

RESULTS

The dimensions "impairment of self-esteem and withdrawal", "rejection experienced", "concealment", and "composure" of the QES could be confirmed by factor analysis. As expected, middle high correlations between the QES and the DLQI were found in both patient groups. However, the stigmatization experience and the quality of life were not significantly different in a subgroup of psoriasis and atopic dermatitis patients with comparable sociodemographic characteristics.

CONCLUSIONS

The short form of the QES with 23 items is a valid instrument for the examination of social and psychic burdens of psoriasis and atopic dermatitis patients. The recording of the stigmatization feeling and of the quality of life determines different, supplementary aspects of the illness-related stress of patients with chronic skin diseases.

摘要

背景与目的

银屑病和特应性皮炎患者常受其皮肤疾病心理社会后果的影响。为可靠评估这些经历,对这些患者群体的耻辱感和生活质量进行了研究。

患者/方法:在463例银屑病和特应性皮炎住院患者样本中验证了“皮肤问题体验问卷”(QES)的简表。此外,还确定了皮肤病生活质量指数(DLQI)。

结果

通过因子分析可确认QES的“自尊受损与退缩”“经历的排斥”“隐瞒”和“镇定”维度。正如预期,在两个患者群体中均发现QES与DLQI之间存在中度高度相关性。然而,在具有可比社会人口学特征的银屑病和特应性皮炎患者亚组中,耻辱感经历和生活质量并无显著差异。

结论

包含23个条目的QES简表是检查银屑病和特应性皮炎患者社会及心理负担的有效工具。耻辱感和生活质量的记录决定了慢性皮肤病患者疾病相关压力的不同补充方面。

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