Treasure J, Murphy T, Szmukler G, Todd G, Gavan K, Joyce J
Eating Disorders Unit, Institute of Psychiatry, London, UK.
Soc Psychiatry Psychiatr Epidemiol. 2001 Jul;36(7):343-7. doi: 10.1007/s001270170039.
The aim of this study was to examine the experience of care giving for people with anorexia nervosa and to compare it with the experiences of those people who care for a person with a psychotic illness.
Carers (parents, siblings and husbands) of people with eating disorders who had experienced an episode of inpatient care for anorexia nervosa (n=71) were given the General Health Questionnaire and the Experience of Caregiving Inventory. A sample of carers (N=68) of people with a psychotic illness from the community were used as a comparison group. A subgroup of the carers (n=20) of people with anorexia nervosa were asked to write about their experiences.
The clinical samples had a similar duration of illness, but the patients with anorexia nervosa were significantly younger and a larger proportion were living at home. The general health scores were significantly higher in the carers of anorexia nervosa and they experienced higher levels of difficulties in most areas of caregiving. A variety of variables from the Caregiving Inventory contributed to the level of psychological distress, accounting for 36% of the variance. The themes of guilt and shame were additional dimensions that were addressed in the letters.
Carers of people with anorexia nervosa are challenged by the difficulties their role produces.
本研究旨在探究神经性厌食症患者的照料体验，并将其与照料精神病患者的体验进行比较。
对曾因神经性厌食症接受过住院治疗的饮食失调患者的照料者（父母、兄弟姐妹和丈夫，n = 71）进行一般健康问卷和照料体验量表调查。选取来自社区的精神病患者照料者样本（N = 68）作为对照组。对20名神经性厌食症患者的照料者进行访谈，要求他们写下自己的经历。
两组临床样本的病程相似，但神经性厌食症患者明显更年轻，且有更大比例的患者居家生活。神经性厌食症患者照料者的总体健康得分显著更高，并且在大多数照料领域都经历了更高水平的困难。照料体验量表中的多种变量导致了心理困扰程度，占方差的36%。内疚和羞耻主题是信件中涉及的额外维度。
神经性厌食症患者的照料者面临着其角色所带来的困难挑战。
