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癌症患者尚未满足的重大需求:探究心理社会问题

The significant unmet needs of cancer patients: probing psychosocial concerns.

作者信息

Soothill K, Morris S M, Harman J, Francis B, Thomas C, McIllmurray M B

机构信息

Department of Applied Social Science, Cartmel College, Lancaster University, UK.

出版信息

Support Care Cancer. 2001 Nov;9(8):597-605. doi: 10.1007/s005200100278.

Abstract

'Significant unmet needs' are those needs that patients identify as both important and unsatisfied. In this article we ask whether the overall needs of cancer patients are actually being met. We believe that the range of unmet need, and the kinds of patients who are more likely to claim unmet need, should be carefully identified. The needs responses of a series of 295 cancer patients in a cross-sectional survey were analysed. The majority expressed the opinion that information and good relationships with health care professionals were important, and few expressed dissatisfaction with these aspects of need. Similarly, needs items about support from family and friends were largely rated as important and satisfied. For a sizeable minority of patients, items of significant unmet need cluster around aspects of managing daily life, emotions, and social identity. The distribution of significant unmet needs is not random but is more likely to be experienced by patients who are younger, have a long-standing illness or disability, do not own/have use of a car, and/or have no religious faith. Furthermore, significant unmet needs relate to patients' ability to talk freely to a carer about the cancer, the degree to which the cancer interferes with social activities, and whether financial difficulties are experienced. Most of the significant unmet need is beyond the remit of services primarily designed for the treatment of disease. We consider whether multidisciplinary cancer teams can be expected to deal with all aspects of the cancer experience.

摘要

“重大未满足需求”是指患者认为既重要又未得到满足的需求。在本文中,我们探讨癌症患者的总体需求是否真的得到了满足。我们认为,应仔细确定未满足需求的范围以及更有可能声称有未满足需求的患者类型。对一项横断面调查中295名癌症患者的需求回应进行了分析。大多数人认为信息以及与医护人员建立良好关系很重要,很少有人对这些需求方面表示不满。同样,关于家人和朋友支持的需求项目在很大程度上被评为重要且已得到满足。对于相当一部分患者来说,重大未满足需求项目集中在日常生活管理、情绪和社会身份认同等方面。重大未满足需求的分布并非随机,更有可能出现在年龄较小、患有长期疾病或残疾、没有汽车或无法使用汽车以及/或者没有宗教信仰的患者身上。此外,重大未满足需求与患者能否自由地与护理人员谈论癌症、癌症对社交活动的干扰程度以及是否经历经济困难有关。大多数重大未满足需求超出了主要为疾病治疗设计的服务范围。我们思考多学科癌症团队是否有望应对癌症经历的所有方面。

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