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遗传咨询中的过程研究:窥探黑匣子。

Process studies in genetic counseling: peering into the black box.

作者信息

Biesecker B B, Peters K F

机构信息

Medical Genetics Branch, NHGRI/NIH, Bethesda, MD 20892-1852, USA.

出版信息

Am J Med Genet. 2001 Fall;106(3):191-8. doi: 10.1002/ajmg.10004.

DOI:10.1002/ajmg.10004
PMID:11778979
Abstract

Genetic counseling is a dynamic psychoeducational process. Yet we know very little about its interior. Process research explores what transpires between providers and their clients and can serve to provide insight into unknown practice dimensions. The few process studies that have been conducted in genetic counseling provide a glimpse into the Black Box, but more of this type of research is needed to examine the contents. To achieve success with process studies a contemporary definition of genetic counseling is proposed. Thoughtfully designed process studies in genetic counseling will provide the data to refine the definition and identify the components of counseling, the communication process between provider and client, the therapeutic interventions used by counselors, and the needs, attitudes and expectations of clients. Overall, process studies will contribute to a more accurate understanding of the practice of genetic counseling.

摘要

遗传咨询是一个动态的心理教育过程。然而,我们对其内部情况知之甚少。过程研究探索了提供者与其客户之间发生的事情,并有助于深入了解未知的实践维度。在遗传咨询领域进行的少数过程研究让我们得以一窥这个“黑匣子”,但还需要更多此类研究来审视其内容。为了在过程研究中取得成功,本文提出了遗传咨询的当代定义。精心设计的遗传咨询过程研究将提供数据,以完善定义并确定咨询的组成部分、提供者与客户之间的沟通流程、咨询师使用的治疗干预措施,以及客户的需求、态度和期望。总体而言,过程研究将有助于更准确地理解遗传咨询实践。

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