Engelhardt H T
Rice University, Baylor College of Medicine, Houston, Texas, USA.
Health Care Anal. 2001;9(3):283-97. doi: 10.1023/A:1012949730926.
The challenge in maintaining patient autonomy regarding medical decision-making and confidentiality lies not only in control over information transferred to and regarding patients, but in the ambiguity of autonomy itself. Post-modernity is characterized by the recognition of not just numerous accounts of autonomy, but by the inability in a principled fashion to select one as canonical. Autonomy is understood as a good, a right-making condition, and an element of human flourishing. In each case, it can have a different content, depending in part on whether it is given a nomological or a volitional construal. Different accounts of autonomy can lead to strikingly different understandings of appropriate behavior, including the argument that one ought on behalf of autonomy to liberate individuals from the sense of autonomy they themselves affirm. In the face of competing accounts of moral probity, autonomy in a secular morality and bioethics must by default be understood in terms of the permission of patients, which makes space for numerous moral accounts and different communal construals of free choice, which in turn will legitimate different practices of informing patients and maintaining confidentiality.
在维护患者在医疗决策和保密方面的自主权时,挑战不仅在于对传递给患者及关于患者的信息的控制,还在于自主权本身的模糊性。后现代性的特点不仅在于认识到对自主权有众多不同的阐释,还在于无法以原则性的方式选择其中一种作为典范。自主权被理解为一种善、一种权利构成条件以及人类繁荣的一个要素。在每种情况下,它可能有不同的内容,部分取决于它是被给予一种法则性的还是意志性的解释。对自主权的不同阐释会导致对适当行为的截然不同的理解,包括这样一种观点,即代表自主权,人们应该将个人从他们自己所肯定的自主感中解放出来。面对关于道德正直的相互竞争的阐释,在世俗道德和生物伦理学中,自主权默认必须从患者的许可角度来理解,这为众多道德阐释以及对自由选择的不同社群性解释留出了空间,而这反过来又会使告知患者信息和保密的不同做法合法化。