Cameron Jill I, Franche Rene-Louise, Cheung Angela M, Stewart Donna E
University of Toronto, Women's Health Program, University Health Network, ON, Canada.
Cancer. 2002 Jan 15;94(2):521-7. doi: 10.1002/cncr.10212.
Providing end-of-life care at home to a family member with advanced cancer can have a negative impact on the emotional well-being of the family caregiver. The current study examined the impact of providing care on lifestyle and emotional well-being in a sample of caregivers to patients with advanced cancer. The mediation of lifestyle interference between the amount of care provided and emotional distress was specifically examined.
Forty-four family caregivers participated in a structured quantitative interview. Lifestyle interference was assessed by the Caregiving Impact Scale, amount of care provided was assessed by the Caregiver Assistance Scale, and emotional distress was assessed by the Profile of Mood States-Short Form. Pearson and partial correlations tested whether lifestyle interference mediated the relationship between caregiving assistance and emotional distress. Regression analyses determined overall correlates of emotional distress.
Three criteria, required to substantiate mediation, were met for total mood disturbance and the depression and tension subscales. An overall regression model identified education level and lifestyle interference to be significant and unique correlates of emotional distress.
The current results suggest that caregivers experience increased emotional distress, regardless of the amount of care provided, when limited in their ability to participate in valued activities and interests. In addition, caregivers with less than a high school education experience more emotional distress. Therefore, helping caregivers maintain valued aspects of their lifestyle should be an important element of home care.
在家中为患有晚期癌症的家庭成员提供临终护理可能会对家庭护理人员的情绪健康产生负面影响。本研究调查了在晚期癌症患者的护理人员样本中，提供护理对生活方式和情绪健康的影响。特别研究了提供护理的量与情绪困扰之间生活方式干扰的中介作用。
44名家庭护理人员参与了结构化定量访谈。通过护理影响量表评估生活方式干扰，通过护理人员协助量表评估提供护理的量，通过简式情绪状态剖面图评估情绪困扰。Pearson相关性分析和偏相关性分析检验了生活方式干扰是否介导了护理协助与情绪困扰之间的关系。回归分析确定了情绪困扰的总体相关因素。
总情绪紊乱以及抑郁和紧张子量表满足了证实中介作用所需的三个标准。一个总体回归模型确定教育水平和生活方式干扰是情绪困扰的显著且独特的相关因素。
当前结果表明，当护理人员参与有价值活动和兴趣的能力受到限制时，无论提供护理的量多少，他们都会经历更多的情绪困扰。此外，高中以下学历的护理人员经历更多的情绪困扰。因此，帮助护理人员维持其生活方式中有价值的方面应成为家庭护理的重要组成部分。
