Hallström Inger, Runeson Ingrid, Elander Gunnel
Department of Paediatrics, University Hospital, S-221 85 Lund, Sweden.
Nurs Ethics. 2002 Mar;9(2):202-14. doi: 10.1191/0969733002ne499oa.
When a child is hospitalized, the parents find themselves in an unfamiliar environment and their parental role changes. They are in a stressful and often anxiety-filled situation and it may be difficult for them to participate in decisions. The purpose of this study was to examine the extent to which parents participate in decisions during the course of events when their child is hospitalized. Thirty-five parents of 24 children (aged 5 months to 18 years) were followed by mobile observation during their child's hospitalization in a paediatric department in Sweden. Three researchers analysed field notes in three steps, using manifest and latent coding. In step 1, 119 situations that included a decision process were identified. In step 2, the situations were assessed according to a five-level scale concerning how the parents' wishes, desires or values had been respected. In step 3, each situation was scrutinized with respect to factors influencing the extent of the parents' participation. The results showed that parents have varying ability to be involved in decision making. Professionals need to communicate more openly with them in order to identify and satisfy their needs because some parents are unwilling or incapable of expressing them.
当孩子住院时，父母发现自己身处一个陌生的环境，他们的父母角色也发生了变化。他们处于压力之下，而且常常充满焦虑，可能难以参与决策。本研究的目的是调查孩子住院期间，父母在整个事件过程中参与决策的程度。瑞典一家儿科病房对24名儿童（年龄从5个月到18岁）的35位家长在孩子住院期间进行了移动观察跟踪。三位研究人员分三步对实地记录进行分析，采用显性编码和隐性编码。第一步，识别出119个包含决策过程的情况。第二步，根据关于父母的意愿、愿望或价值观得到尊重程度的五级量表对这些情况进行评估。第三步，针对影响父母参与程度的因素对每个情况进行详细审查。结果表明，父母参与决策的能力各不相同。专业人员需要与他们更开放地沟通，以便识别并满足他们的需求，因为有些父母不愿意或无法表达这些需求。
