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出血性疾病患儿家长对优质医疗保健的认知

Perceptions of quality health care among parents of children with bleeding disorders.

作者信息

Cygan Mary Louise, Oermann Marilyn H, Templin Thomas

机构信息

Children's Hospital of Michigan, Detroit, USA.

出版信息

J Pediatr Health Care. 2002 May-Jun;16(3):125-30.

Abstract

INTRODUCTION

This study examined how parents of children with bleeding disorders defined quality health care, their expectations for care at the clinic, and indicators of quality health care important to them.

METHODS

Parents (N = 54) answered two open-ended questions and completed the Quality Health Care Questionnaire, which examined the importance of 33 indicators of quality care.

RESULTS

The most important indicators of quality care to parents were being included in decisions about their child's care (M = 4.98), being cared for by nurses who are competent and up-to-date (M = 4.94), and being cared for by doctors who are competent and up-to-date (M = 4.94).

DISCUSSION

The results of this study are consistent with earlier research involving other groups of consumers. Parents view quality care as being included in decisions about their child's care and having competent and caring providers with whom they can communicate. In contrast to earlier research, however, waiting time was the least important indicator of quality care.

摘要

引言

本研究调查了出血性疾病患儿的家长如何定义优质医疗保健、他们对诊所护理的期望以及对他们而言重要的优质医疗保健指标。

方法

54名家长回答了两个开放式问题,并完成了《优质医疗保健问卷》,该问卷调查了33项优质护理指标的重要性。

结果

对家长而言,最重要的优质护理指标包括参与孩子护理决策(M = 4.98)、由称职且与时俱进的护士护理(M = 4.94)以及由称职且与时俱进的医生护理(M = 4.94)。

讨论

本研究结果与早期涉及其他消费者群体的研究一致。家长将优质护理视为参与孩子护理决策以及拥有能够与之沟通的称职且关爱他们的医护人员。然而,与早期研究不同的是,等待时间是优质护理最不重要的指标。

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