Jungbauer Johannes, Mory Claudia, Angermeyer Matthias C
Universität Leipzig Klinik und Poliklinik für Psychiatrie, Germany.
Psychiatr Prax. 2002 May;29(4):181-5. doi: 10.1055/s-2002-30682.
Part II of this study will explore more accurately, how caregivers of schizophrenic patients perceive the financial burdens of the disease.
42 In-depth-interviews with parents and spouses of schizophrenic patients were analysed using a qualitative-interpretative technique.
When talking about their living situation, caregivers tended to keep away from the topic of financial charges; often they played down objective financial disadvantages or didn't assess them as burdensome. Considerable financial burdens were reported by parents of young patients still living in the parents' household and by spouses in families with very low income.
Financial burdens are usually superimposed by other problems of the caregivers, such as dealing with acute episodes and sorrow about the future. Thus, not only the material, but also the immaterial costs of caregivers should be taken into consideration when taking health policy decisions.
本研究的第二部分将更准确地探讨精神分裂症患者的照料者如何看待该疾病的经济负担。
采用定性解释技术对42名精神分裂症患者的父母和配偶进行了深入访谈并进行分析。
在谈论他们的生活状况时，照料者倾向于回避经济费用的话题；他们常常淡化客观存在的经济劣势，或者不认为这些是沉重的负担。仍住在父母家中的年轻患者的父母以及低收入家庭中的配偶报告了相当大的经济负担。
经济负担通常被照料者的其他问题所叠加，比如应对急性发作以及对未来的担忧。因此，在制定卫生政策决策时，不仅应考虑照料者的物质成本，还应考虑其非物质成本。
