Jungbauer Johannes, Angermeyer Matthias C
Universität Leipzig, Klinik und Poliklinik für Psychiatrie, Johannisallee 20, D-04317 Leipzig, Germany.
Psychiatry. 2002 Summer;65(2):110-23. doi: 10.1521/psyc.65.2.110.19930.
Based on the analysis of 42 in-depth interviews, this article highlights different aspects of the subjective burden experienced by parents and spouses of patients suffering from schizophrenia. The onset of a schizophrenic disorder and acute episodes during the later course of the disease lead to considerable emotional distress for the patients' caregivers. In everyday life with the patient, parents and spouses experience a comparatively less dramatic chronic burden, which nevertheless can severely affect their living situation and well-being. Caregivers often feel disappointed and dissatisfied with the information and cooperation offered by psychiatric institutions. Parents and spouses perceive the caregiver burden differently, although there are some apparent similarities. The study reveals that the symptoms of a schizophrenic disorder as well as different family roles contribute to the subjective burden of parents and spouses. Supportive assistance for schizophrenic patients' caregivers should address their particular needs more adequately.
基于对42次深度访谈的分析，本文重点探讨了精神分裂症患者的父母和配偶所经历的主观负担的不同方面。精神分裂症障碍的发作以及疾病后期的急性发作给患者的照料者带来了相当大的情绪困扰。在与患者共同生活的日常中，父母和配偶经历着相对不那么剧烈的慢性负担，然而这仍然会严重影响他们的生活状况和幸福感。照料者常常对精神病机构提供的信息和合作感到失望和不满。尽管存在一些明显的相似之处，但父母和配偶对照料者负担的认知有所不同。研究表明，精神分裂症障碍的症状以及不同的家庭角色导致了父母和配偶的主观负担。对于精神分裂症患者照料者的支持性援助应更充分地满足他们的特殊需求。
