改善印第安地区癌症护理的创新之路。
An innovative path to improving cancer care in Indian country.
作者信息
Burhansstipanov L, Gilbert A, LaMarca K, Krebs L U
机构信息
Native American Cancer Research, Pine, CO 80470, USA.
出版信息
Public Health Rep. 2001 Sep-Oct;116(5):424-33. doi: 10.1093/phr/116.5.424.
Abstract
The Native American Cancer Survivors' Support Network is an innovative public health program designed to improve survival from cancer and the quality of life after a cancer diagnosis for American Indians, Alaska Natives, and Canadian Aboriginal patients and their loved ones. The Network, initiated in 1999, now has more than 300 survivors enrolled as members. This article briefly describes the process that led to its formation and preliminary findings, primarily for breast cancer survivors, of ongoing qualitative and quantitative research. Network data show patterns of cancer care that are partially responsible for poor survivorship outcomes.
摘要
美国原住民癌症幸存者支持网络是一项创新的公共卫生项目，旨在提高美国印第安人、阿拉斯加原住民以及加拿大原住民患者及其亲人在癌症诊断后的生存率和生活质量。该网络于1999年启动，目前已有300多名幸存者注册成为会员。本文简要介绍了其形成过程以及正在进行的定性和定量研究的初步结果，主要针对乳腺癌幸存者。网络数据显示了癌症护理模式，这些模式对不良的生存结果负有部分责任。
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本文引用的文献
1
Native American cultural aspects of oncology nursing care.
Semin Oncol Nurs. 2001 Aug;17(3):206-19. doi: 10.1053/sonu.2001.25950.
2
Minorities, women, and clinical cancer research: the charge, promise, and challenge.
Ann Epidemiol. 2000 Nov;10(8 Suppl):S3-12. doi: 10.1016/s1047-2797(00)00200-3.
3
The importance of qualitative research in addressing cultural relevance: experiences from research with Pacific Northwest Indian women.
Health Care Women Int. 1999 Sep-Oct;20(5):517-25. doi: 10.1080/073993399245601.
4
Conducting focus groups cross-culturally: experiences with Pacific northwest Indian people.
Public Health Nurs. 1999 Jun;16(3):190-7. doi: 10.1046/j.1525-1446.1999.00190.x.
5
The role of community review in evaluating the risks of human genetic variation research.
Am J Hum Genet. 1999 Jun;64(6):1719-27. doi: 10.1086/302415.
6
Recruiting minority cancer patients into cancer clinical trials: a pilot project involving the Eastern Cooperative Oncology Group and the National Medical Association.
J Clin Oncol. 1999 Mar;17(3):1029-39. doi: 10.1200/JCO.1999.17.3.1029.
7
Patterns of cancer mortality among Native Americans.
Cancer. 1998 Dec 1;83(11):2377-83. doi: 10.1002/(sici)1097-0142(19981201)83:11<2377::aid-cncr18>3.0.co;2-z.
8
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Cancer incidence and mortality, 1973-1995: a report card for the U.S.
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