本土与非本土癌症幸存者的生活质量比较：本土与非本土癌症幸存者的生活质量
Comparison of quality of life between Native and non-Native cancer survivors: Native and non-Native cancer survivors' QOL.
作者信息
Burhansstipanov Linda, Dignan Mark, Jones Katherine L, Krebs Linda U, Marchionda Paula, Kaur Judith Salmon
机构信息
Native American Cancer Research Corporation, 3022 South Nova Road, Pine, CO 80470-7830, USA.
出版信息
J Cancer Educ. 2012 Apr;27(1 Suppl):S106-13. doi: 10.1007/s13187-012-0318-3.
This paper compares quality of life (QOL) outcomes between Native American and non-Native cancer survivors. Native Patient Navigators helped Native cancer patients complete a 114-item QOL survey and access survivorship information available on the NACES website. The survey was modified from Ferrell et. al’s QOL measure and assessed the four domains of cancer survivorship: physical, psychological, social, and spiritual. Findings from Native survivors were compared to Ferrell’s findings. This is the first time that QOL outcomes have been compared between Native and Non-Native cancer survivors. Natives scored lower for physical and social QOL, the same for psychological QOL, and higher for spiritual QOL in comparison to non-Natives. Overall QOL scores were the same. Although this is the largest sample of Native cancer survivors reported in peer-reviewed manuscripts, these Native survivorship data are based on a self-selected group and it is unknown if the findings are generalizable to others.
本文比较了美国原住民癌症幸存者和非原住民癌症幸存者的生活质量（QOL）结果。原住民患者导航员帮助原住民癌症患者完成了一项114项的生活质量调查，并获取了NACES网站上提供的生存信息。该调查是在费雷尔等人的生活质量测量方法基础上修改而来的，评估了癌症生存的四个领域：身体、心理、社会和精神领域。将原住民幸存者的调查结果与费雷尔的结果进行了比较。这是首次对原住民和非原住民癌症幸存者的生活质量结果进行比较。与非原住民相比，原住民在身体和社会生活质量方面得分较低，心理生活质量得分相同，精神生活质量得分较高。总体生活质量得分相同。尽管这是同行评审手稿中报道的最大规模的原住民癌症幸存者样本，但这些原住民生存数据基于一个自我选择的群体，尚不清楚这些结果是否适用于其他人。
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