Borbasi Sally, Cameron Kate, Quested Bev, Olver Ian, To Bik, Evans Dan
School of Nursing and Midwifery, Flinders University, Adelaide, Australia.
Oncol Nurs Forum. 2002 Aug;29(7):1051-7. doi: 10.1188/02.ONF.1051-1057.
PURPOSE/OBJECTIVES: To explore patients' experience of chemotherapy-induced oral mucositis.
Interpretive descriptive, phenomenologic.
The cancer center of a metropolitan teaching hospital in South Australia.
A purposive sample of six participants undergoing intensive cytotoxic therapy associated with autologous hematopoietic stem cell transplantation.
Patients were interviewed at different stages of their treatment trajectory and asked to relate their experience of oral mucositis as it developed and resolved.
Participants' reports indicated three distinct phases representing linear time in the course of their mucositis: the preparatory phase, the peak phase, and the persisting phase. Five themes further abstracted were the presence of nurses, therapeutic interventions, manifestations of mucositis, the distress of eating (and not eating), and whether the treatment was worthwhile.
Oral mucositis is much more than a sore mouth. The effects of mucositis are widespread and can have a marked effect on patients' psychological well-being.
Care centers often focus on pain control through pharmacologic intervention and overlook the effects of other sequelae. Nurses' role in helping patients to cope with mucositis should encompass more than providing pharmacologic pain relief.
目的/目标：探讨患者化疗引起的口腔黏膜炎经历。
诠释性描述性现象学研究。
南澳大利亚一家大都市教学医院的癌症中心。
从接受与自体造血干细胞移植相关的强化细胞毒性治疗的患者中，有目的地选取了6名参与者。
在患者治疗过程的不同阶段对其进行访谈，要求他们讲述口腔黏膜炎发生及缓解的经历。
参与者的报告表明，在口腔黏膜炎病程中呈现出三个不同阶段，代表了线性时间：准备阶段、高峰期和持续阶段。进一步提炼出五个主题：护士的陪伴、治疗干预、黏膜炎的表现、进食（或不进食）的困扰以及治疗是否值得。
口腔黏膜炎远不止是口腔疼痛。黏膜炎的影响广泛，会对患者的心理健康产生显著影响。
护理中心通常侧重于通过药物干预控制疼痛，而忽视了其他后遗症的影响。护士在帮助患者应对口腔黏膜炎方面的作用应不仅仅是提供药物止痛。
