Carter Patricia A
School of Nursing, University of Texas, Austin, TX, USA.
Oncol Nurs Forum. 2002 Oct;29(9):1277-83. doi: 10.1188/02.ONF.1277-1283.
PURPOSE/OBJECTIVES: To describe caregiver sleep and depression using caregiver narratives. To compare qualitative descriptions with quantitative scores.
Descriptive, one-time, open-ended interview followed by structured sleep and depression questions.
Interview conducted in person or via telephone at caregiver's preference.
47 caregivers of patients with advanced stage cancer. Caregivers had a mean age of 54 years, and most were female (81%), Caucasian (82%), and spouses (61%). They provided care for a mean of 24 months. Patients' diagnoses were lung cancer (36%), colorectal cancer (13%), or recurrences (51%).
Two cancer care sites in southern California provided participants. After consent, the researcher conducted interviews. The Pittsburgh Sleep Quality Index (PSQI) and Center for Epidemiological Studies-Depression (CES-D) instruments were administered following interviews.
Sleep pattern changes and depression levels over time as defined by caregivers.
Caregivers described severe fluctuations in sleep patterns over time and how these changes affected caregiver depressive symptoms. PSQI and CES-D scores matched narrative comments.
Caregivers' narratives suggest they suffer progressive sleep deprivation that affects their emotions and ability to continue as caregivers.
Nurses must recognize the severe sleep problems experienced by caregivers and respond with interventions to increase sleep quality and decrease depression.
目的/目标：使用照顾者的叙述来描述照顾者的睡眠和抑郁情况。将定性描述与定量评分进行比较。
描述性、一次性、开放式访谈，随后是结构化的睡眠和抑郁问题。
根据照顾者的偏好，亲自或通过电话进行访谈。
47名晚期癌症患者的照顾者。照顾者的平均年龄为54岁，大多数为女性（81%）、白种人（82%）且为配偶（61%）。他们平均提供照顾24个月。患者的诊断为肺癌（36%）、结直肠癌（13%）或复发（51%）。
南加州的两个癌症护理点提供了参与者。在获得同意后，研究人员进行访谈。访谈后使用匹兹堡睡眠质量指数（PSQI）和流行病学研究中心抑郁量表（CES-D）。
照顾者所定义的随时间变化的睡眠模式变化和抑郁水平。
照顾者描述了睡眠模式随时间的严重波动以及这些变化如何影响照顾者的抑郁症状。PSQI和CES-D评分与叙述性评论相符。
照顾者的叙述表明他们遭受渐进性睡眠剥夺，这影响了他们的情绪以及继续担任照顾者的能力。
护士必须认识到照顾者所经历的严重睡眠问题，并通过干预措施来提高睡眠质量和减轻抑郁。
