Seki Y, Yamazaki Y, Inoue Y, Wakabayashi C, Seto S
Department of Nursing, School of Health Sciences, Gunma University, 3-39-15 Shoua-Machi, Maebashi, Gunma 371-8514, Japan.
AIDS Care. 2002 Oct;14(5):651-64. doi: 10.1080/0954012021000005489.
The purpose of this study is to find out how HIV-infected haemophiliacs were informed and notified of their HIV infection. Self-reporting questionnaires were mailed to approximately 500 patients, about one half of the haemophiliac patients with HIV in Japan. The response rate was about 57% (n=283); and 270 (male=269) patients, apart from secondary and tertiary infected patients, were eligible as subjects for the study. The mean age was 31.2 +/- 9.9 years. Of these subjects, approximately 60% did not receive explanation regarding the risk of HIV infection via unheated blood products. More than 60% did not receive notification until 1990, or five years after the test became available in Japan. Contents of the explanations being given at the time of notifications were poor. In this paper, some problems of notifications of medically induced HIV are discussed, and the lack or delay of explanation/notification is concluded to be a consequence of the paternalistic attitudes of Japanese physicians and the iatrogenic nature of HIV infection.
本研究的目的是了解感染艾滋病毒的血友病患者是如何得知自己感染了艾滋病毒的。自行填写的调查问卷被邮寄给了约500名患者，约占日本感染艾滋病毒的血友病患者的一半。回复率约为57%（n = 283）；除二代和三代感染者外，270名（男性269名）患者符合本研究的受试者条件。平均年龄为31.2 +/- 9.9岁。在这些受试者中，约60%没有接受过关于通过未加热血液制品感染艾滋病毒风险的解释。超过60%的人直到1990年，即该检测在日本可用五年后才收到通知。通知时所给出的解释内容欠佳。本文讨论了医源性艾滋病毒通知中的一些问题，并得出结论，解释/通知的缺失或延迟是日本医生家长式态度以及艾滋病毒感染医源性本质的结果。
