Seki Yukiko, Yamazaki Yoshihiko, Mizota Yuri, Inoue Yoji
Saitama University, Saitama-shi, Saitama, Japan.
Qual Health Res. 2009 Jun;19(6):723-31. doi: 10.1177/1049732309334250. Epub 2009 Mar 30.
Japanese families traditionally avoid disclosing diagnoses of terminal illnesses to patients, seeking to protect the patient from emotional pain and shock. Using awareness theory, in this study we aimed to investigate the attitudes toward disclosure among bereaved families of Japanese hemophiliacs with iatrogenic HIV/AIDS. Semistructured interviews were conducted with 34 bereaved family members. Qualitative content analysis centered around three main issues: (a) family attitudes toward physician nondisclosure of HIV diagnosis; (b) family attitudes regarding the consequences of nondisclosure; and (c) family attitudes regarding the impact of nondisclosure on patient-family relationships. Our findings suggest that families favored disclosure because they felt that knowledge of the iatrogenic HIV infection would benefit the patient.
传统上，日本家庭会避免向患者透露绝症诊断信息，试图保护患者免受情感痛苦和冲击。本研究运用认知理论，旨在调查感染医源性艾滋病毒/艾滋病的日本血友病患者遗属对信息披露的态度。我们对34名遗属进行了半结构化访谈。定性内容分析围绕三个主要问题展开：(a) 家属对医生不透露艾滋病毒诊断的态度；(b) 家属对不透露诊断后果的态度；(c) 家属对不透露诊断对患者与家属关系影响的态度。我们的研究结果表明，家属倾向于披露信息，因为他们认为了解医源性艾滋病毒感染情况会对患者有益。
