White Patience H
Children's National Medical Center, Washington, DC, USA.
Pediatrics. 2002 Dec;110(6 Pt 2):1328-35.
Youth with special health care needs/disabilities want what all youth in America want: independence, health, friends, and jobs. Yet, between 19 and 23 years of age (depending on the state), youth with special health care needs/disabilities often find little availability of health insurance or health providers that were an essential part of why they survived and now are looking to participate in adult society. This article reviews the complex system of health insurance options that young adults with special health care needs/disabilities face as they move from pediatric to adult health insurance systems. Yet because of a maze of different eligibility criteria, many of these options are not available to young adults with special health care needs, and they are left with out health insurance. Similarly, the issues surrounding health provider reimbursement often leave the young adult with special health care needs without health care professionals who can manage their complex health conditions as they transition into adulthood. In conclusion, this article outlines what steps could be taken by associations and the health policy, advocacy, and governmental communities to improve the situation.
有特殊医疗需求/残疾的青少年想要的和美国所有青少年一样：独立、健康、朋友和工作。然而，在19至23岁之间（取决于所在州），有特殊医疗需求/残疾的青少年往往很难获得医疗保险或医疗服务提供者，而这些对于他们能够存活下来且现在希望融入成人社会至关重要。本文回顾了有特殊医疗需求/残疾的年轻人从儿童医疗保险系统过渡到成人医疗保险系统时所面临的复杂医疗保险选择体系。然而，由于一系列不同的资格标准，许多这些选择并不适用于有特殊医疗需求的年轻人，他们因此没有医疗保险。同样，围绕医疗服务提供者报销的问题常常导致有特殊医疗需求的年轻人在过渡到成年期时，没有能够管理其复杂健康状况的医疗专业人员。总之，本文概述了协会以及健康政策、倡导和政府部门可以采取哪些措施来改善这种情况。
