Packham J C, Hall M A
Oxford Regional Paediatric Rheumatology Unit, Wexham Park Hospital, Slough SL2 4HL, UK.
Rheumatology (Oxford). 2002 Dec;41(12):1440-3. doi: 10.1093/rheumatology/41.12.1440.
To examine social function, relationships and sexual activity in adults with juvenile idiopathic arthritis (JIA).
Two hundred and forty-six adults identified with long-standing JIA had an average disease duration of 28.3 yr. Specific information was sought on marital status, offspring, age at first sexual encounter, and problems related to disease in sexual activity and pregnancy.
Fewer patients (42.8%) were in stable relationships than their siblings (55.3%). The percentage of patients with children was 27.5. Twenty-three per cent of all known pregnancies ended in miscarriage. Of the women who had had a Caesarean, 78.9% had either reduced hip mobility or short stature. JIA had a detrimental effect on body image in 50.7% of patients but relationships were affected in only 28.2%. The percentage of patients who were sexually active or had had previous sexual experience was 83.3; 58.3% of these had disease-related sexual problems.
A significant proportion of individuals are sexually active before transfer to adult rheumatology care at the age of 18 yr. This highlights the need to introduce sexual counselling in adolescent clinics. The high incidence of psychological sexual problems may benefit from appropriate counselling and training.
研究青少年特发性关节炎（JIA）成年患者的社会功能、人际关系及性活动情况。
246例确诊为长期患JIA的成年患者，平均病程为28.3年。收集了关于婚姻状况、子女情况、首次性接触年龄以及性活动和妊娠中与疾病相关问题的具体信息。
处于稳定关系的患者（42.8%）少于其兄弟姐妹（55.3%）。有子女的患者比例为27.5%。所有已知妊娠中有23%以流产告终。在接受剖宫产的女性中，78.9%存在髋关节活动度降低或身材矮小的情况。JIA对50.7%的患者身体形象有不良影响，但仅28.2%的患者人际关系受到影响。有性活动或有过性经历的患者比例为83.3%；其中58.3%存在与疾病相关的性问题。
相当一部分个体在18岁转至成人风湿病科治疗之前就有性活动。这凸显了在青少年诊所引入性咨询的必要性。心理性问题的高发生率可能受益于适当的咨询和培训。
