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246例青少年特发性关节炎成人患者的长期随访:教育与就业情况

Long-term follow-up of 246 adults with juvenile idiopathic arthritis: education and employment.

作者信息

Packham J C, Hall M A

机构信息

Oxford Regional Paediatric Rheumatology Unit, Wexham Park Hospital, Slough SL2 4HL, UK.

出版信息

Rheumatology (Oxford). 2002 Dec;41(12):1436-9. doi: 10.1093/rheumatology/41.12.1436.

DOI:10.1093/rheumatology/41.12.1436
PMID:12468826
Abstract

OBJECTIVE

To examine the levels of education and employment in adults with juvenile idiopathic arthritis (JIA) compared with their siblings and national figures.

PATIENTS AND METHODS

Two hundred and forty-six adults identified with long-standing JIA had an average disease duration of 28.3 yr. Educational achievements and employment status were recorded and comparative data obtained from siblings and the National Office for Statistics, UK. The effects, incidence and nature of discrimination in the workplace were also explored.

RESULTS

Across all levels of education the study group achieved significantly better results than both the national average and their siblings. In contrast, the rate of unemployment in the patient group was more than twice that in the national population. The percentage of patients who had encountered discrimination in the workplace was 25.1.

摘要

目的

与患有幼年特发性关节炎(JIA)的成年人的兄弟姐妹及全国数据相比,研究这些成年人的教育水平和就业情况。

患者与方法

246名确诊为患有长期幼年特发性关节炎的成年人,平均病程为28.3年。记录其教育成就和就业状况,并从其兄弟姐妹及英国国家统计局获取比较数据。同时还探讨了职场歧视的影响、发生率及性质。

结果

在各个教育水平上,研究组取得的成绩均显著优于全国平均水平及其兄弟姐妹。相比之下,患者组的失业率是全国人口失业率的两倍多。在职场遭遇歧视的患者比例为25.1%。

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