Landolt Markus A, Grubenmann Sandra, Meuli Martin
Pediatric Burn Center, Department of Surgery, University of Children's Hospital, Zurich, Switzerland.
J Trauma. 2002 Dec;53(6):1146-51. doi: 10.1097/00005373-200212000-00019.
Although there is some knowledge of psychological adjustment, almost nothing is known about quality of life in pediatric burn survivors.
Parents of 105 burn survivors (age, 5-17 years; total body surface area burned, 10-64%) were assessed by standardized questionnaires 1 to 13 years postburn. Predictive values of clinical variables and family environment were assessed.
Most dimensions of quality of life and psychological adjustment were normal. Compared with healthy norms, burn survivors only showed less positive emotions. Good family relationships and younger age at burn injury were the only significant predictors of good quality of life. Psychological adjustment was predicted by family relationships.
If given optimal care, most pediatric burn survivors demonstrate excellent quality of life. Families with compromised relationships and patients with higher age at burn injury should be identified early, monitored closely, and offered psychosocial support as soon as dysfunctional family dynamics are detected.
尽管对心理调适有所了解,但对于小儿烧伤幸存者的生活质量几乎一无所知。
通过标准化问卷对105名烧伤幸存者(年龄5 - 17岁;烧伤总面积10% - 64%)的父母在烧伤后1至13年进行评估。评估临床变量和家庭环境的预测价值。
生活质量和心理调适的大多数维度正常。与健康标准相比,烧伤幸存者仅表现出较少的积极情绪。良好的家庭关系和烧伤时年龄较小是生活质量良好的唯一显著预测因素。心理调适由家庭关系预测。
如果给予最佳护理,大多数小儿烧伤幸存者表现出优异的生活质量。关系受损的家庭和烧伤时年龄较大的患者应尽早识别,密切监测,一旦发现家庭动态功能失调,应尽快提供心理社会支持。