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[镰状细胞贫血患儿的管理:一项合作工作]

[Management of children with sickle cell anemia: a collaborative work].

作者信息

de Montalembert M

机构信息

Service de pédiatrie générale, hôpital Necker-Enfants-Malades, 149, rue de Sèvres, 75015 Paris, France.

出版信息

Arch Pediatr. 2002 Nov;9(11):1195-201. doi: 10.1016/s0929-693x(02)00083-0.

Abstract

Treatment of children with sickle cell disease has been impressively improved during recent years. Neonatal screening is now generalized to all continental France. Coupled with parents' education and a comprehensive care program, it allows a reduction of pneumococcal infections, and of the mortality related to splenic sequenstration, the occurrence of cerebrovascular accidents being also reduced by the use of transcranial Doppler ultrasonography. However, to be effective these measures require a close collaboration not only between parents and the medical team but frequently also between the medical team and social workers, as many affected children living in France are born from first generation African migrants, for whom it may be difficult to understand and/or to apply the care program.

摘要

近年来,镰状细胞病患儿的治疗有了显著改善。目前,新生儿筛查已在法国全境普及。结合家长教育和综合护理计划,可减少肺炎球菌感染以及与脾梗死相关的死亡率,使用经颅多普勒超声检查还可减少脑血管意外的发生。然而,要使这些措施有效,不仅需要家长与医疗团队密切合作,而且医疗团队与社会工作者之间也常常需要密切合作,因为在法国,许多患病儿童是第一代非洲移民的后代,他们可能难以理解和/或实施护理计划。

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